Here we go again !

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My cystoscopy Today showed inflammation and more suspicious cells. In 2 years So far I've had 4 operations, 3 to remove tumours or burn off areas and a kidney removed. I've had intravenous chemo, bladder chemo and the bugger keeps coming back . Luckily the bladder cancer is always superficial but when is it gonna stop !! And what's next after my next operation. How much more can my bladder take before they whip it out !? Anyone else having so many recurrences. ? I'd just like ONE clear cystoscooy !! 

  • Hey  . Good to hear from you again, but sorry to hear you are still having continual problems. Hopefully the inflammation is just that and they can sort you out. I have had a few false alarms over the year with inflammation so know how you must be feeling. Keep your chin up. Best wishes.

    Best wishes to All,   rily.

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  • Thanks Riley

    Another biopsy and diathermy and then who knows. My last cystoscopy in August showed inflammation But they thought it could have been due the the mitymicin. Unfortunately today it was still there with added  coral like areas ! It's sadly just become part of my life now, but I remain positive as I'm still here x 

  • Hi Pugs. Not much of a consolation but maybe a bit of hope. My flexi a few months ago showed some flaky bits they were not sure of so had me back six weeks later. All gone. This thing just likes to keep us on our toes. All you can do is go with the flow and try not to worry too much in the in between times. Best wishes.

    Best wishes to All,   rily.

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  • Hi Pugsy,Sorry to hear it’s back again.Best wishes for your next treatment and biopsy.Jane 

  • So just had my 5th operation and 4th TURBT  in 2 years. This one seems harder as was sick after op and seem in more pain. They said 50 % of my bladder was affected and they are concerned about my remaining kidney . All seems superficial but just keeps coming back  I'm more worried this time as I need that one kidney. Hopefully my Ct scan results which weren't back in time will show its ok. Looks like my final treatment option is BCG as mitymicin didn't work. Then if that's unsuccessfull I could lose thd bladder. I continue to have no real symptoms so it almost seems so unreal. I know I'm one of the lucky ones but would just like a break now. Anyone lost both kidneys ? And is Bcg as good as they all say   I hope so xx 

  • Hi Pugsy,I’m so sorry to hear this,you have been through it and it must be disheartening the mitomycin hasn’t worked.Fingers crossed for the BCG.There are plenty on here who have good results with it.Love and best wishes Jane xx

  • Thankyou Jane  I feel I can cope with anything they throw at me so long as I can continue to care for and ride my horse Millie x luckily I have a supportive husband x 

  • Good to hear you have a supportive husband.Best wishes for your scan results.Love Jane xx