Hi,my husband has mibc T2 he's having gem cis chemo after his last long one about 5 days after his 4th toe was very painful and slightly swollen without having any trauma,also cramp pain in back of his leg at the top,he went for his short chemo on Tuesday and mentioned it,they looked at his toe and it was blue black underneath so sent him to a&e suspecting a blood clots. After tests and scan they can find no clot, but mentioned blue toe syndrome has anyone else had anything like this as we baffled. Sorry such a long post.
Afraid I know nothing about 'blue toe syndrome' . But I suggest you find a knowledgeable pharmacist, maybe the oncology one if you can get access to them? and ask if the chemo is likely to have caused eg a mineral imbalance that could be treated. Just the cramp pain makes me wonder if for example he could have become magnesium deficient. Or the treatment is affecting blood circulation in some way. Don't take anything without qualified advice.
Hope you get answers as you have got enough on your plate without extra mysteries. But I think you will have to chase this up as they have ruled out the obvious answer.
Best,
Denby
Thank-you Denby, its really baffling,he's got a week off from the chemo so hopefully by the time he goes again it will have cleared. I will call his oncology nurse on Monday and see if she has come across it,and mention magnesium as maybe he has a deficiency.
You're welcome. Don't want to be down but I wouldn't necessarily count on the nurse knowing, though obvs hope so. But I think nursing training has less biochemistry than pharmacy.
Sensible website recommends keeping warm and rest, plus all manner of possible checks for whether it is caused by blood not reaching to the toe/leg [arteries] or not clearing from the toe/leg [veins] or possible types of blockage.
Check, but probably good to keep it up level some of the time [get gravity on his side] but wiggle the foot to help circulation. Check, if it is OK or not to take raw root ginger, which is very good for capillary circulation. If it is OK it goes down well with dark chocolate or chopped in milky cereal. Usual amount would be a slice about like a one-or-two-pound coin.
Hope you get helpful answers on management as above as well as the origin.
Denby
Hi channie1
Are they going to do a follow up scan for clot? My husband developed a swollen leg and despite initial scan not showing a clot, a later scan showed a big clot at the top of his leg. He's on blood thinners now. The oncologist said it's quite common with chemo.
So just be mindful and if it gets worse go back to the hospital or your GP and make some noise.
All the best
Di
Hi, they didn't say a follow up was necessary,but his gp rang and said any changes to contact her and she will make arrangements. They scanned his groin area and right down to his toes. Hopefully it's just a chemo thing and goes soon. He says it feels better today so fingers crossed. Thank-you for commenting take care x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007