Follow-up scans - how long?

Hi Bagman . My situation is different as I had radiotherapy rather than cystectomy, but I have been having annual checks for ten years nearly with no sign of it stopping. Best wishes.

Thanks - I’ll ask when I eventually get to talk to the urologist!

Hello Bagman sorry i cant answer your question but im just wondering did the lymph nodes have cancer in them or where they removed with cystectomy and they biopsied them and found them clear?

Thanks

Andy

The latter - 17 lymph nodes removed and biopsied, all were clear. 

Thanks glad things have been good for you

Hi

It's usually two scans a year for five years and then yearly check ups. I had my RC in 2017, but in my case they discovered incidental prostate cancer, so my six monthly checks have continued. I am back on three monthly as they discovered a lung nodule (quite comnon), which appears to be benign, so the likelihood is  I'll be back on 6 monthly in the near future.

In short, every case is different and I would definitely ask next time around. If you have a Specialist Nurse you might want to ask them for advice. My Nurses are brilliant

Interesting. I’ve only ever had annual ones in August - this will be #4. My urologist didn’t seem to know when I asked last year!

Hi Bagman,I also had cystectomy in 2019.I’ve been having six monthly scans and then last year I was supposed to start annual scans.That didn’t happen because the scan showed a problem with my kidneys.I had a scan this May and will be having another in Nov.If the November scan is ok it will be annually from then on.I have a different urologist now and contact is just a few minutes by phone.I also have a lung nodule but they don’t seem bothered about it.He is not that interested in the kidney problem either.Best wishes Jane