Post TURBT question

Hi WTF359 and welcome to the group although sorry to hear Pops has bladder cancer. A CT scan is quite normal so don't be alarmed. It is to rule out anything elsewhere and gives them a better picture of what they are dealing with. Also it is not uncommon to have more than one tumour in the bladder. Bladder cancer has a good success rate and many of us have been there. Lots of experience here so always some with an answer to any questions you may have. Best wishes.

Hi WTF359,Welcome to this friendly supportive group.Best wishes Jane 

Good morning WTF359 . As rily said a ct scan is normal procedure, like having a map if you are going on a journey. Don’t be surprised either if your Pops is called to have another TURBT. It’s not unusual to have a second look.to make sure that nothing has been missed

I had multiple CT scans over a12 month period as they were looking for other sites and found benign growths in my lung, kidneys and liver. They were checking to see whether they grew or changed over time. They were also monitoring my bladder cancer and it assisted with the continuation of my BCG treatment. The scans and surgery proves the nhs are doing everything they can at the appropriate time. I have had seven operation procedures over last three years mostly for biopsies and two TURBT. I have also had 21 of 27 BCG treatment sessions. I am sure everything will be fine for you.

So unfortunately my Pops told me a white lie. He went for a CT scan yesterday and it was his consultants appointment today. 
some of the cancer cells are high risk so he needs another TURBT and then 6 sessions of BCG.

Consultant was horrendous and really flippant apparently until my Mum kicked off. Then he had a meeting with his urologist cancer specialist nurse who was lovely and explained everything to him. 

It’s all a roller coaster isn’t it. 

thank you for the advice 

Hi,It’s not uncommon to have a second TURBT.It’s best that the bladder is looked at thoroughly especially if the cells are high risk.There is plenty of experience and advice on here for you and your family.People tend to feel better emotionally once they start treatment.It Is rollercoaster but everyone here will help.Love and best wishes Jane 

Thank you so much. 

Hi WTF359.

I can see some great advice posted already from the lovely regulars who helped me when I first got diagnosed with BC.

I found reading other people's experiences a help so after my diagnosis (late 2022) I've had a CT scan, MRI and two TURBTs. Followed up with 6 BCG treatments.

For me the anticipation was worse than the procedures.

Just waiting for my next TURBT appointment and then potentially more BCG treatments, which can go on for a while.

Wishing you and your dad all the best.

Thank you. I really appreciate this. 

I expect your Pops was just trying to protect you & avoid you worrying. I gave my Mum a fairly edited version of my condition until I knew exactly what I was dealing with & what treatment I would be having. Plenty of us here have had high grade, which is very treatable if still not muscle invasive. 

I'm afraid not all consultants have a good bedside manner, even if excellent specialists. Good that the specialist nurse was on hand. Hope he does well with the BCG.