Newbie here

Hi Maxi,

Well done on following up so promptly on the blood in your urine. All of us on here have been where you are and survived to tell the tale. It's OK to worry at the start because it's facing the unknown. But there are recognised treatments for this and as you become more used to the situation it will become quite normal. 

I think the operation you refer to will be a TURBT which lasts an hour and during which they take samples to check what is there. I had mine several years ago and it was straightforward. After that they agreed a treatment plan for me, which I endorsed and we worked together to get me through it.

From the moment I was diagnosed I didn't worry, just got on with it. Worrying doesn't cure anything, just wastes the energy I needed to get better. 

I appreciate that not everyone reacts like that but it has stood me in good stead. It also helped the family to cope as they saw me being calm and using humour to deflect. And I have now been clear for over 3 years. 

Once you know what you are dealing with there are many of us who can help with information and support.

All the best,

Latestart

Thank you Latestart. 

I will take this advice fully on board. I was never a quitter. It is just a bit of a shock to the system for me. But I am sure it is temporary. As you say there I will get on with it as there's no point in worrying too much. Good news is that doc said it is very small and I should make good recovery. Thank you very much for replying. Have a great day.

Hi Maxi,Welcome to our friendly supportive group.Best wishes Jane 

Hi Jane. Thank you for the warm welcome

Well done for acting quickly. Sit tight, your TURBT will happen soon, and they can then devise a treatment plan for you. I had my 1st TURBT in Dec 2023. I am now in remission. All the best, Leo

Having a diagnosis of someting potentially serious is always a shock. But better detected and addressed than not - if it is definitely BC, plenty of treatment options, especially if caught early. After the TURBT there is a wait of 2 - 3 weeks or so to get the results. You may be sent for other tests eg CT scan, so the consultants have the full picture. Hope all goes well for you.

Welcome to the forum Maxi. 

Been there done that myself same 1cm papillary tumour initially. 

I have had a frew small recurences a couple of times. Had Mitomycin directly into bladder for a 6 week course once a week. Sadly that didn't stop recurences for me so not long completed 6 weeks of Epirubicin instead. 

Waiting for my next admission to hospital for a rigid cytoscopy to see if that has worked this time. 

It's been a bit of a roller coaster ride over the last nearly 2 years but lots of great support and advice on here. 

The early days are the worst wating for results and answers to all the questions you have. 

There is no dignity from now on and some not nice things have to be done but you sort of get used to it after a while. 

And also remember people hear the word cancer and assume it's a death sentence, it isn't and bladder cancer is one of the most treatable ones there is especially when caught early. 

And also try not to overly worry or over think things as it won't do you any good, when you have answers and treatment plans it makes life a little easier to deal with things. 

I would also add read some of the stories of others on here, some have gone through way worse than some of us, so it helps to read to keep things in perspective how good some of us have it compared to others. 

Some have been down very hard roads and had awful experiences and are still here many years on helping others navigate this awful journey. 

I find it helps me keep my troubles in perspective mostly, but we all have wobbles from time to time and this is a great place to talk or vent your problems. 

The support from such lovely people on here also really helps, people going through or gone through similar actually understand more than people who haven't so again it's a source of comfort and help. 

I can not thank you enough everybody. The replies I got from you are so heart warming and also very informative. I will hold tight and wait for the next stages of this journey and what future holds. Very helpful community here. Thank you from the bottom of my heart.

It's all you can do really but think positive and try not to overthink things just yet. 

Oh and apologies I misread your user name as Max somehow so apologies for that, mind auto correct usually messes my posts up, but that one was fully me this time. 

Everyone on here has helped me and many others massively, it is a big shock and people really need to find useful support.