Newbie here

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Hi All.

I am Max and new here. Had my flexible cystoscopy yesterday and unfortunately doc found a little growth (about 1cm) which looks like a seaweed. 
Noticed some blood in urine (and little clots) at the end of January and decided to get myself checked. Now I am so very scared about the whole thing. Doc said they will operate soon so waiting for the letter with anxiety.

  • Hi Maxi,

    Well done on following up so promptly on the blood in your urine. All of us on here have been where you are and survived to tell the tale. It's OK to worry at the start because it's facing the unknown. But there are recognised treatments for this and as you become more used to the situation it will become quite normal. 

    I think the operation you refer to will be a TURBT which lasts an hour and during which they take samples to check what is there. I had mine several years ago and it was straightforward. After that they agreed a treatment plan for me, which I endorsed and we worked together to get me through it.

    From the moment I was diagnosed I didn't worry, just got on with it. Worrying doesn't cure anything, just wastes the energy I needed to get better. 

    I appreciate that not everyone reacts like that but it has stood me in good stead. It also helped the family to cope as they saw me being calm and using humour to deflect. And I have now been clear for over 3 years. 

    Once you know what you are dealing with there are many of us who can help with information and support.

    All the best,

    Latestart

  • Thank you Latestart. 

    I will take this advice fully on board. I was never a quitter. It is just a bit of a shock to the system for me. But I am sure it is temporary. As you say there I will get on with it as there's no point in worrying too much. Good news is that doc said it is very small and I should make good recovery. Thank you very much for replying. Have a great day.

  • Hi Maxi,Welcome to our friendly supportive group.Best wishes Jane 

  • Hi Jane. Thank you for the warm welcomeBlush

  • Well done for acting quickly. Sit tight, your TURBT will happen soon, and they can then devise a treatment plan for you. I had my 1st TURBT in Dec 2023. I am now in remission. All the best, Leo