Struggling to understand where I am at.

That is sounding promising.Fingers crossed that the node remains shrunken.Best wishes Jane x

That's so good to hear some positive news for you. One day at a time, take the best care of yourself you can lots of good fresh food, fruit veggies etc, some treats too. It sounds more positive with either operation or immunotherapy, which I would go for but I am not you and you have to follow their lead I suppose. Glad things looking up a, little. Keep strong. 

So i received a letter yesterday from my oncologist it was a copy of the letter sent to Urologist. It stated that the response i had to chemo was what they were hoping for and asking him to consider surgery for the removal of the primary. It stated that the only site of metatstasis(sp) was 1 para aortic lymph node which had responded to chemo.

So heres hoping that surgery will help prolong my poor diagnosis and i can finally go on the holiday the we first booked in 2020 and have moved 6 times with covid etc.

I’ll keep everything crossed for you.Love Jane x

Hi Chefski, I have just joined this group and just read your post from the beginning to this present one and can see a  good improvement in your plan and results to date so I will be saying my prayers for you that all goes well, take care

Bladder 

The holiday sounds fabulous. I am about to get away for my first break since diagnosis (T4 N1 M0). Reading your story, wow, been through the wringer chefski. Keep on keeping on though, day by day, step by step. Couple of things, holiday and insurance (if travelling abroad) and get a letter of OK from your oncologist. Plus, if staying in the UK, remember your paperwork and check if your oncologist would recommend the best hospital in the locale for dealing with you in the unlikely event of a complication, etc.

When it arrives, have a great break, set a rule, no C chat after....etc

Have a corker.

Simon

Well Chemo now finished 6 cycles. 

Had appointment with the urologist yesterday, he said that everything depends on my exit scan which is due next Thursday. If the scan is the same as it was at midpoint then they are going to do a cystoscopy to check my bladder etc and then decide whether they start with removing my right kidney and ureter and treating my bladder with BCG or whether they will just remove kidney, ureter, bladder, prostate and urethra.

So have my fingers crossed but still cant get an answer to some questions nobody will now say whether they are looking at potentially being cancer free (yes i know it can come back) or whether this is still palliative. So frustrating but still keeping positive and holding out hope :)

Thanks grumpyparr  always keep going and as you say day by day. Now just waiting on plan to see when surgery will be to try and squeeze in the holiday hopefully before but if they just remove kidney maybe still xmas :)

Hi chefski,Good to hear you have got through the chemo.I’ll keep my fingers crossed for you for positive results.It really isn’t good enough that you have been messed about and had all these delays.It does make me cross that communication can be so poor and the patient is not informed of what is happening.Best wishes for your scan.Love Jane x

Hey Chefski, chemo smashed, I get my 4th next week! Fingers crossed for next week, hope the news is positive, you get the opportunity to holiday and recover fully.

In fact, let's all err on the side of positive, your cancer has gone, a treatment plan for surgery is agreed, carried out with minimal delay and you get to keep on keeping on.

Big hugs and positive vibes

Simon