Hi - hope all is good as...
after 2 rounds of bcg and recently a round of mitomycin...they still found a tumour , 1 cm and st 1 g3. I am feeling weird about it , with a range of strong emotions from when I found out yesterday. It's like options for treatment have run out and now I am faced with the stark choice of removal or 'watchful waiting'. Has any one got a view on these stats please:
-For stage 1 high grade non invasive , there is a 70% of re-occurrence and a 20% chance that it will invade the muscle
- There is a 10-30% chance that cancer will return once you have the bladder removed.
Both these figures are from BCAN presentations by credible surgeons.
I have a meeting with my surgeon on 10/6 and I would like him to give me an idea of life expectancy/impacts on quality of life If I leave it and it does enter the muscle v having bladder removed.
On the face of it the 20% chance it will invade muscle seems like decent odds to me v the 10-30% chance it will return once the bladder is removed.
For the first time I am now starting to feel a bit panicky as there is so much more stuff going on too.
I am 59 , have been single for quite a few years (not sure I can cope with removal recovery on my own with out it affecting my mental health) and I am in relatively good health otherwise.
Thanks for reading- I just needed to share...
Pienmash
Hi Pienmash. I know it's difficult not to overthink things when there is no definite plan in place and you are waiting for appointments. I personally never bothered with the statistics as I believe we are all individuals. Everyone's cancer is different even though they are lumped together in basic groups. The benefit of this group is that you can share your thoughts with people who understand. Best wishes.
