Hello everybody
Had my first TURBT on 18th Feb. Went for my path results with the surgeon on Tues 1st March. He told me that he had taken out 6 tumours but that they were non muscle invasive and therefore classed as Ta (low grade/slow growing). He said that because of the number they had to be classed as G2 (intermediate) and that I would need to start on a course of Mitomycin (once a week for 6 weeks) to try and make sure they got all the cancer cells.
They didn't give me any mitomycin after my TURBT but probably after the MDT meeting decided to do the "belt and braces" stuff because of the number entailed. Will be starting the course in around 6/8 weeks as outpatient appointments. (No inpatient driving stress involved !! 
)
After TURBT recovery .... OK for a few days (probably running on adrenaline). Since then getting aching period type pain and constant back ache but surgeon said it would take me longer to get over the surgery due to the larger area of the bladder involved. However able to carry on with normal activities.
It's good to read all the info and experience on here regarding mitomycin, as to my mind, personal experience is much more reassuring and insightful than anything else.
Thanks for all your input and wish everybody all the best x
Hi there
Yes when multiple tumours it dies take longer and I can relate to the cramps dam painful!!!
I hope they have explained the process m, my first treatment I had to wait the 2 hours to check I was well and could pass urine to rid the toxic waste.
you may get a burning of the bladder when you go to toilet as all part of the treatment lovely.
Im glad you are slow growth after 4.5 years mine has been slowed down by BCG thankfully. Also wonderful non invasive so pleased for you.
Only advice I’d offer is eat healthy, decaf tea or coffee as I was told caffeine causes irritation so just a heads up. Try not to over do things and any signs of bleeding tells you ease up
Stay well
Gizie Cat x
