Couple of questions about my first course of BCG treatment (in France)

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Hi, 

Apologies if this has already been covered. I did start to read the threads but I'm a bit squeamish and some of the detail started to freak me out a little. 

I do like my urologist but I don't get to see her much. Also, I haven't been in France very long and my French is still bad which doesn't help matters. Bottom line is I have less info than I would like about what's happening.

So, I'm 3 sessions in to my course of 6 BCG treatments. How long after the 6th treatment are they likely do the follow up inspection (cystoscopy?)?

Do you think they'd agree to a general anaesthetic option for the cystoscopy? I realise this might be down to the particular clinic.. but is it unheard of? If it is are there any good local anaesthetic options? 

Thanks

  • Hi and welcome to the group. Not sure about the situation in France, but I believe treatment is fairly universal. In the UK, follow up cystoscopies are usually about 6 weeks after treatment, but can vary. They need to let any inflammation die down before they look. It is nearly always a flexible cystoscopy. Checks under GA can be expensive and hospital beds are in short supply at the moment. Is there any reason you do not want a flexible under local? I know they are not pleasant, but only take a few minutes. Best wishes.

    Best wishes to All,   rily.

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  • Hi and welcome to the group ... I had 6 induction bcg treatments and had a rigid cystoscopy under GA about 2 months after ..I then had 3 maintenance bcg treatments and had a flexi cystoscopy with no anaesthetic I have my next round of 3 bcg treatments in November.. I was diagnosed with cis which is classed as grade 3 .. I hope all goes well for you so many on this forum will provide support and advice xx

  • Thank you both. 

    Is that a rule of thumb - flexible = local (or none apparently!) and rigid = GA?

  • I'm just horrified by the idea of tubes being inserted into my dick. When I first got diagnosed and realised what was going to happen it seemed an unbearable prospect. But 2 operations and 3 BCGs later .. I found it's just something you have to get on with whether you like it or not. I had a session yesterday and someone passed me a note from the nurse who was on duty the week before wishing me well and telling me it would be fine. I was so moved. Anyhow it made me realise that in terms of being nervous during the treatment I must be a bit of an outlier. 

  • It's always an anxious time going for a flexible cystoscopy. A worry of what you may see, but also very reassuring when nothing found. They do use an anaesthetic gel. I have had more than 20 flexis over the years and so far so good. You just have to leave your feelings at the door. Best wishes.

    Best wishes to All,   rily.

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  • more than 20..

    I won't be looking at any monitors. I feel more scared of the procedures than I am of the outcome which I know is irrational. Presume that's because I'm new to it so maybe that'll change. 

  • My experience is I had the first turbt  8th July,  bcg started beginning August with 6th and last bcg 9th September.  The first checkup was 13th October. This was a rigid cystoscopy under GA. I think the idea is to have all in place for a second turbt if necessary and take as many biopsies the consultant think necessary. I did not have new growths thank God, and I will have results from biopsies around 26th October... 

    Good luck!

  • Thank you. I already had a 2nd turbt under GA before they started the BCG, so maybe my follow up will be a flexible cystoscopy with a 'local' (if you can call that gel a local). I'm pleased for you that you got a good result.  

  • Hi,Flexi is usually done under a local and rigid under a general anaesthetic.I’ve always found the flexible cystoscopy less painful,it only takes a few minutes.Best wishes for the rest of your treatment.Jane.