Thought I’d best give an update and get my house in order before I jump on the rollercoaster. Having my Nephrostomy fitted on Monday and Gem/Cis chemo starts on the 23rd August. And it’s my 65th birthday on the 12th but I might delay celebrations for that for a bit. Of all that I’ve got ahead of me, it’s still the Nephrostomy that bothers me the most. Not the having it fitted but the practicalities of living with it. I’ve met with the stoma nurses who’ve shown me what all the various attachments look like but I’ve heard horror stories about leaky bags and dodgy valves so I’ve invested in a waterproof mattress cover and disposable bed pads. But the thought of having to rely on district nurses 3 times a week to change the bag is really doing my head in. I phoned them this morning to politely ask what the process would be and if they had set times they would come - but it seems it will be when they can fit it in between 8 am and 8 pm. I do have the option of going to the surgery 3 times a week to get it done there but I can’t drive for at least 10 days after having it fitted, plus do I want to risk that trip while I’m having chemo? I really don’t know but I’ll see how it goes. Wish me luck folks x
Hi Stritty. You sound really positive and prepared for what lies ahead. Wishing all goes smoothly for you going forward. Best wishes.
Good luck you are dealing with everything so well xx try not to worry about having to rely on help for the time being you need to concentrate on getting well again you will get there but we all need help and support sometimes xx I was looking forward to celebrating my 65th birthday last November but covid put a stop to that xx take care and have a lovely birthday 
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