My dad (91 yr old diabetic) went through chemo and radiation for stage 3 last year. Initial follow-up MRI showed a couple "residual" spots....Three month follow-up MRI showed the spots had doubled in size. Docs said no more radiation but they could try another chemo. Dad decided no more treatment. I support that decision.
My question is about blood in his urine. For several weeks, he was passing lots of blood and clots. Then for a couple weeks, no blood/clots. Then again for a week....and so on. I guess I assumed that it would just happen and stay that way. This coming and going is weird - and the hospice nurse doesn't get it either.
Thought I would ask here. Anyone have a clue as to what is happening here?
Thanks for any thoughts you can offer. And may you all have peace.
Alynne, the question you have asked can only be answered by a qualified medic who has your dad's case history to refer to. Every patient reacts to treatment differently yet many may share your dad's symptoms to a greater or lesser degree. It may give some reassurance to find someone who has experienced similar symptoms after similar treatment but it is unwise to assume any read-across as outcomes can vary considerably. Right. Those are the genuine cautions which must be borne in mind.
In 2017 my main symptom was blood and clots in urine. I had medium dose radiotherapy later that year which suppressed the bleeding for about 3 months. It also destroyed about 95% of a non-muscle invasive 7cm tumour in my bladder. When the bleeding restarted with a vengeance in early 2018 clots blocked my system, causing an ambulance ride, touch and go survival and 3.5 weeks in hospital. An emergency TURBT (no chemo wash) was carried out at the 2 weeks point. This much reduced the bleeding but a further TURBT had to be performed later that year to try to stop the bleeding. It was reasonably successful. Up to that point I had had 22 units of blood in transfusions in the 2017/2018 period. I was put on a palliative, symptom driven treatment regime in early 2019. I have had Foley urethral catheters continuously since late 2018, replaced at scheduled at 12 then 8 week periods or when blocked. I have always had occasional bleeding since late 2018, sometimes quite heavy (red wine) with clots. This year I've had bleeding for an hour or more of varying severity on 22 days so far. My medical team is only aware of these details because I report them to my GP or the Urology nurses (sometimes doctors) who replace my catheters. I am not on any medication, I'm not diabetic and not scheduled for further treatment despite the tumour slowly growing back. This situation is because a heart problem was discovered back in 2017 which ruled out chemo or radical surgery. Another TURBT, although more risky than for someone with a healthy heart, is a possibility at some point in the future. I'm now 76. So I have some similarities with your dad's situation and I'm still here, living independently (alone), driving etc.. Things can work out and be tolerated but there's no guarantee that your dad's symptom path will take the same route. I hope this helps a bit. Best wishes. Ray xx
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