Thought I’d better get this written down while I’m still in shock and it all seems surreal. Apparently the team meeting to discuss my results isn’t until tomorrow as they only came through yesterday but my situation is serious with the added need for speed as my kidney is not draining. The cancer is T2b G3. Firstly I need to have a CT scan to see if it’s on my lungs. If it is there are no treatment options but he doesn’t think it will be as my pelvis and lymph nodes are clear and it would generally travel upwards.
Then I need a chest drain followed by 3 cycles of chemo 3 weeks apart and then I have the option of radiotherapy or an op to remove my bladder,uterus, ovaries and appendix. If I have the radiotherapy I will have to keep the kidney drain permanently. If it doesn’t work I won’t have the option to remove my bladder. If I have the op and it doesn’t work I still have the option of the radiotherapy. So provided my CT scan shows no spread to the lungs, I think the only sensible option is the operation to have all my bits removed. I won’t need the kidney drain then.
so that’s it in a nutshell. I don’t know what I was hoping for or expecting but I don’t think it was this. It’s all just so surreal, I don’t know when it’s going to sink in.
Hi Stritty. Sorry the news was not what you hoped for and a lot to take in. Firstly, try not to read anything in the CT scan as this is purely routine and just precautionary to rule anything else out. It's always annoying when they get these appointments in the wrong order. It would have been better to get your consultation after the MDT meeting and then you would have been given better information. These are the things we have to put up with. If they propose your next step is chemo, then this gives you a lot of time to consider your options and get as much info as possible to help with your decision. One step at a time. Best wishes.
Hi hope you are feeling bit better 
when you have your ct scan you will feel more at ease when results come through.. I found out I had a anuerysm in my heart through the ct scan no inkling at all I had it up until then .. I was diagnosed with bladder cancer and anuerysm about same time ..really shook me up at first but learning not to dwell on it nothing will change so trying my very best to keep going as before.. hard sometimes but I keep trying to be positive xx I have tried hard to make some life changes for the benefit of my health as I was plodding along with life doing as I pleased not ever needing or considering the circumstances.. I found myself having to phone for ct results often but never had much response I wish they could have let me know the results sooner it would have saved me so much anxiety xx take care and try to keep on with your blog you are also helping others dealing with this journey as well as yourself xx thinking about you love Tina xx
