Hi
has anyone got any advice for living with (I hope temporary) external bile drains?
I had part of my liver, bile duct and gall bladder removed a year ago to remove the cancer and have since had various post operative chemo/immunotherapy treatments start/stop as my liver function has been affected by high bilirubin. Various IR interventions have resulted in a series of internal stents and temporary external bile drains, and I’m currently having to manage two. The bags are large, with long piping that’s ok in a hospital bed but a right pain in everyday life, not least as it’s all too easy to develop kinks in the tubing and resultant blocks and leaks.. I flush them regularly and have a homemade bag to carry them around with me.
Any advice welcome!
