I did come on here a couple of weeks ago when I was first diagnosed but not had the courage to come on and read anything till now!_
Since then I’ve had a lot of appointments and scans, now feeling totally overwhelmed and actually wondering if I can actually get through this.
I've now seen my oncologist whom advised that I will have six weeks of both chemotherapy and radiotherapy Monday to Friday with no treatments weekends, she also advised that as this type of cancer is hard to detect until formed they are also targeting lymph nodes, bones, rectum, pelvis i can’t remember what else she said I was in complete shock by this point, she also said is this did not work I would have to have the operation and permanent stoma bag, I was literally in disbelief I thought it was going to be tough but this sounds awful to me.
I also thought all the pain in my lower back was due to the tumour but apparently not the CT scan identified a fracture in my spine the sacrum ALA, previously when I moved home in August I dI’d slip on the stairs landed on my bottom and sort of bounced down the stairs, the pain was horrendous but I just thought it was bad bruising and swelling but I had no idea it was a fracture, I generally did not realise it was this bad, so I am now being referred to orthopaedics as well, my consultant did say orthopaedics probably would not be able to treat yet because of my treatment that is starting soon in January
I have been given my first sessions but everything has had to be changed because I’m away on holiday from beginning of January until the 12th so even though I had informed them of this they sent appointments for the 12th to start, it has now been changed to the 19th, I’ve had my scan and tattoos done for the radio and have my appointment with chemo team on the 23rd December them my 1st chemo infusion 19th January at 9am then my radiotherapy at 11-45 I’m really dreading it with that amount of waiting around after the chemo especially if it makes me feel unwell
I feel a bit better writing it down but my head is literally all over the place, is this normal to feel this bad I’m so apprehensive, scared and a generally feeling that I can’t do this, sorry if I’m moaning already even before it starts
