Hi.

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I posted in the general questions the other day, but here's my story.... I'm across the pond in North Carolina... I have 6cm mass that seems to be higher than normal for ASCC. No surgery, it is not fully blocking my bowels, but I live on a regular supply of laxatives for the time being. So far from the CT, PET and MRI it does not appear the cancer has spread, thankfully. I go today to get my chemoradiation simulation. I have 30 days of treatment starting on the 28th of this month. I think like most of you I'll have the two IV infusions of chemo and the daily oral chemo throughout the treatment. It's the treatment that's scary and the what ifs... that come after treatment is done. I'm a school librarian here, and tomorrow I get to go let my principal know that I'll likely not be there the first month of school. I think I see that most of you say the last half of treatment and anywhere from 2-4 weeks post treatment are not so fun... I hear once treatment starts I'll feel a little better so I'm excited about that. The laxatives are getting old ( almost three months now) and I'm quite uncomfortable for the latter part of the day... could be worse! I'm so grateful for this group! I am a mom of two mostly grown boys - one is out of the house for the time being living his best life, the other is 17... He's going to my oncology appt today with me. The doctor offered it as a way to soothe his anxiety about mom being sick... Thanks for being here all!

GRANNY59 1 day ago

Hi Rubin w us welcome to the forum from across the pond. I noticed innyour post that you were going today for a follow up appointment and your son was going with you. Just wondering how you got on, was it a helpful and informative meeting about what's next and how did your son manage with being there with you. Best wishes for now. Gail x

Squeak. 1 day ago

Welcome to the forum..

I hope your appointment went well today and your son feels a little more at ease..

The first few weeks of treatment I was ok .. but the last few weeks and the 3 weeks after are hard and I definitely would not have been able to work..

I really hope your treatment goes well..

Im 5 months post treatment now and starting to get back to full strength and normality..

Squeak

Rubin w us 1 day ago in reply to GRANNY59

Hi- my oncologist actually suggested I bring him so he knows he’s getting accurate not watered down info. It went really well. My dr is overwhelmingly positive in all the best ways and I think that was good for my son to hear. My son is 17 if that helps at all!

Irene75359 1 day ago

Hello Rubin w us

A warm welcome to our little corner in the MacMillan Forum but I am sorry to hear of your diagnosis and that you had the need to come here. That said, you have come to the right place, we have all either been through it, are going through it or newly diagnosed and are very supportive of each other.

And how mature and caring of your son to accompany you to your appointment. I hope you were both reassured, such a good idea, your oncologist sounds awesome! And you haven't got long to wait before treatment starts; it is a relief after all the investigations and scans that finally you are on the road to getting rid of this cancer.

You are right, the latter part of treatment can be very hard, so if it is at all possible take as much time off as you can to recuperate after what is a pretty toxic treatment. And get a calendar to mark off the days of treatment, it is surprising how quickly it passes.

And we are always here to help support should you need it. And any questions, just call out - we talk about everything here!

Big hug

Irene xx

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