Third chemo and a positive chat

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Hello

Back in hospital for my 3rd carbo/Taxol, bloods excellent and feeling very well overall.

Had a chat with Oncologist, imunotherapy still waiting for Goverment budget sign off, but more radiotherapy is an option depending on response to chemo. Radiotherapy have asked for a CT tomography scan after 4 months treatment.

I also bumped into my lovely surgeon and he has asked me to send a message after the forth treatment and he will check progress and review options.

My brain is telling my body that further treatment will become available.

Wishing everybody the best day possible.

Ally xx 

  • This is all positive news  , hopefully the budget for the immunotherapy will get signed off soon. 

    The advancement in cancer treatments moves at a fast pace so who knows what’s around the corner, what the next big break through will be?

    Keep those positive thoughts in the forefront of your mind.

    Sending lots of positive thoughts your way.

    Nicola 

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    I am really pleased that you are feeling so well with this chemotherapy, most of the time I sailed through without any hiccups either.

    And your team is so onboard too, which is great, in having such a proactive group of professionals looking after you must continue to be morale-boosting.

    And a fervent hope from me that the immunotherapy is very close on the horizon...

    Big hug

    Irene xx  

  • So glad you are feeling well and that you have the potential of immunotherapy that I don’t think we have in the UK at the moment according to my oncologist. I’ve just done my first session of cycle 2 after a week delay due to low neutrophils. Hoping that they stay high enough to avoid any further delays in treatment.  Also feeling very well although I think slightly less energy than before. Just hoping it’s doing some damage to the tumours and not just to my hair!! 

    Sarah xx

  • Great to hear the second session went well Sarah and I have my fingers crossed that the next sessions will go well.

    Before treatment started the lymph nodes in my clavicle had slightly raised. I am convinced they have got smaller, but I could be imagining it. I've never been good at waiting, so a scan after treatment 4 seems forever to wait. More gardening, DIY, baking and cleaning to keep my mind of that.

    I was hoping to get out this morning, but the Boss said no. Not because of my health, but they believe you should be in hospital for the full treatment. Hoping for a flyer tomorrow so I can visit a local garden centre.

    Imunotherapy is in the lap of the gods hear. They have just elected their ninth government in 5 years and the health system is badly in debt. For me to get access, it must become available to all hospitals. It's the only one they will use for anal cancer, so let's see what happens.

    I am very much hoping that surgery and radiotherapy becomes an option. I have HPV16 and it responds well to being burnt out. My mets are a bit all over the place, so hoping that some will be quiet to enable treatment on others.

    I have also read lots of positive stories about liver mets after chemo. Options for surgery and ablation further down the line.

    I'm guessing that purple wig is on order?

    Ally xx

  • I really should re-read my posts, I can't spell and have lost the ability to punctuate!

  • The wig (more pink than purple)  has arrived but needs its fringe trimming before I can wear it. I still have enough hair to get away with a hat and am hopeful that it will remain that way although I am still shedding what seems like a lot. xx