Countdown to begining treatment

  • 5 replies
  • 41 subscribers
  • 240 views

I thought this week I'd meet up with friends, pop into London... make the most of the time before treatment officially beings on 9 December. 

Butt - I met with my bestie yesterday and we sat in a cafe and I couldn't hold back the tears - today I cancelled my plans to see friends later on in the week - I can't bear either a pity party or toxic positivity!  And I don't want anyone to feel awkward or sad...

So I'm now in the do anything to keep myself busy mode - and that's okay!  I'm trying not to spend too much time of the Facebook Anal Cancer community group because literally that gives me the fear... 

Me and the hubby are going to go out for dinner tomorrow night and I'll spend a day doing Christmas shopping - thinking that Christmas might not be so bad - 12 days of Chemo/radiation.... Might still be in the sweet spot? 

Anyway not much of a useful share... eeling more terrified than sorry for myself - I'm not angry or bitter - I'm thinking that not many people enjoy January/February so I'm not missing out on anything.

Anyway not much of a useful share...  Butt I know some of you will relate.... 

Right off to do some washing-up! 

  • Hi Badass,

    Related a lot to what you said. In the end I was really picky about who I told because I knew I wouldn't be able to handle people feeling sorry for me, and to be honest I was a bit embarrassed about it too.

    I would suggest you make the most of the run up to Christmas, enjoy the time and do some preparation so that you have nice things to eat and drink in case your appetite changes once you start. Buy some small treats like lovely shower gel or books you like. Once you start, allow yourself to enjoy small pleasures, and use the time to rest and let the treatment work.

    I haven't been on the FB page, tend to just stick with this - would you recommend it?

    Finally, if you feel a bit down try to think forward. This treatment has a really high success rate, so you will hopefully be recovering and getting your life back by early spring!

    Hugs

  • Hi

    I understand the fear as you put it and having a good cry is a release its healthy, but I can honestly say while treatment wasn't a walk in the park it wasn't as bad as I expected and while it's still relatively early days my recovery from treatment has been good I've been back to the gym and going back to work on Wednesday although I'd rather not Joy. It's a couple of months out of your life to get your health back. You got this. Xx

  • Hey Mrs Badass - Great post for others just starting their dally with AC use this forum its priceless. 

    Friends mean well and can say all the wrong things, or disappear on you.... I went into this quite positively wanting to share what was going on in the hope others would get checked out for any lumps and bumps, then by the end of 3-4 weeks I really didn't want to see anyone much but hoped things would balance out. 

    Everyone is different and my side effects were not nice at all, went on longer - the opposite of some people on here who had less pain after treatment than before.  You just can't tell how you will be but anxiety is real and taking time to handle it and get better is essential!  As someone else has put its a short time to give to be better.  Success rates are high x  Do everything you can manage until you need to rest then rest x You will get through this and be badass even more x 

    I have just checked and am exactly 4 months past radiotherapy last day (2/8), at work, going on holiday, walking loads and eating almost anything I like with a glass of wine and all is great.

    Be smiley, be brave and you will sail through x 

    Sending love Angie x 

  • Mrs Badass

    I hear you.  When I was first diagnosed I couldn't investigate anything or read anything online, I was living in this dark world of overwhelming fear and there were triggers everywhere and I was just trying to get through each day.  So keep your loved ones close and the next couple of months will be over before you know it.

    And people mean well, they really do, but there ought to be a cancer handbook with instructions on helping those with a diagnosis.  I had the most amazing support from my family, one night my two daughters and I all had a group cry, a big group hug and then drank some wine and I remember that night so warmly.  They were as frightened as me and it certainly helped me that there wasn't any positivity swirling around.

    I find this group by far the best, it is small enough that we build on-line relationships with others in the same boat and everyone is so supportive.  Not that they aren't in other groups but small is sometimes better!

    Irene xx

  • Hi  ,

    Firstly anything that you want to share here is always a useful share. Secondly if ever there’s a time when you should absolutely please yourself in what you do or whom you do it with its now! Now is the time to concentrate on you & bring on your self-care A game.

    I agree, January, you’ll not be missing anything & if it wasn’t for my daughters birthday being early February I’d say the same about that too! 

    I hope you enjoyed your date night & the best advice I can give about starting treatment is just take each day as it comes, I got almost to the end of my treatment before the skin reaction became really noticeable & I was terrified having read some really awful accounts of the treatment, in hindsight I wasted a lot of precious energy on the fear. 

    Wishing you all the very best of luck for the 9th. Let us know how you’re doing. 

    Nicola