Scan time again (issues)

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Good afternoon everyone.

October already! I had my CT scan a week ago, what a kerfuffle. The 2 pints of water an hour before was agonising to hold on to! I now have a new nurse, she can sometimes be very difficult to get hold of

I have been suffering discomfort, stiffness and sometimes pain ever since my chemo/radio in my tummy, hips, lower back etc My bloods a few weeks ago came back clear with no tumour markers which is wonderful. My team don't seem concerned with my current discomfort. I am however. 

Back last October they observed that localised lymph nodes were inflamed, they explained that the nodes would be treated alongside the tumour with the radiotherapy. 

The discomfort seems to be in and around my sitting bones. Does anyone else have experience of a similar pain? 

Also in the last few days I have a really hot sensation around my genitals which feels so peculiar. 

Any advice will be much appreciated

PaddyBud x

  • Hello PaddyBud

    I am waiting on a Dexa scan as my hips and pelvis constantly ache (I am 2 1/2 years from finishing treatment).  I had physiotherapy and it didn't help, I try to keep active and walk every day with my dog, but aches and pains seem to be the norm for me now.  If you look up effects from pelvic radiotherapy it sounds as if you are suffering from similar.

    Sorry if it isn't this isn't what you want to hear, I accept it as one of the side effects from the treatment that means I am still here enjoying life (and I do!) but I don't always grin and bear it gracefully.

    The hot sensation is a new one, but I am hoping that someone who has experienced similar will pick up on this and reassure you.

    It is so good to hear from you again and I hope you get some answers.

    Irene xx