Morning all,
Hope you’re all doing ok. I’ve been under the weather (again!) still not quite out the woods. Downstairs all healed beautifully and so quickly (honestly cannot recommend StrataXRT gel for radiation burns prevention enough, expensive but worth every penny in that respect I seem to be ahead of others treated at the same time as me).
So I’ve been quiet on here as just getting in with antibiotics for a chest infection. Was hoping that was what all the chills and sweats were (nope they’ve carried on) but I’m less breathless and slightly more “me” than I was.
However, the nausea carries on in the background which makes eating a trial but I’m doing it none the less as need the nutrition (have lost 2.5 stone which is a good thing as I had it to lose!) and we aren’t sure yet of the exact cause but likely bloody pressure related as I am dizzy and fainty almost all the time. Brain a scan ruled out mets (although I was always sure that it wasn’t that but I seem to have the most thorough onco ever! Great chap) but the other day typically the only time my husband has left me alone I fell in a dead faint and woke up face planted into the carpet. Sounds funny but I was so disorientated and no idea what had happened, how long I’d been there and obviously hadn’t managed to put my hands out to save me and had landed on my nose, ouch! Not broken just bruised! It took me a while to get myself up as I just seemed so slow and my arms were like lead.
Anyhoo have had MORE blood tests (will have hardly any blood left at this rate!) to see if there is anything viral or post viral going on. Plus possibly it may be a blood pressure problem as I mentioned above. Saw a liver specialist yesterday because liver still wasn’t improving since we ditched chemo 4 weeks ago although ironically the blood tests arrived the morning of the liver consultation were slightly improved! He was happy that although the numbers look alarming they just show liver in distress nothing sinister. Phew! So just seems I took a particular dislike to chemo and am taking longer to recover than most. He’s organising an ultrasound scan too just to have a peep at it and presumably to make sure it’s not just a bag of rosé wine ha ha! (Don’t worry have touched a glass in months.. too green for that!).
So I’m trying to get to bottom of some of the things that actually may not be caused by virus or illness at all. Like the hot flushes. I was perimenopausal prior to this (I’m 51) so had tried bioidentical HRT a couple of years ago but actually felt it was a bit over the top for me at the time as my symptoms weren’t that strong didn’t really have hot flushes. I used Oestrogel and progesterone pills.
Well I’m assuming now that I will no longer have periods that I do not require the progesterone part of that treatment. Does anyone know if you just use the Oestrogel on its own? Obviously I’ll speak to my doctor next week but wanted you knowledgeable ladies input before I try it out and your thoughts on if it’s worth it
Currently being very careful about giving my poor liver a rest. I have no need of any pain killers anymore (hooray, small wins) and have finished strong antibiotics and antivirals. So I don’t want to start taking random stuff unnecessarily although the gel is topical so shouldn’t affect my liver and I’d love to knock these wretched hot flushes on the head!
Anyone else had the constant dizziness and any fainting this long after treatment? Someone mentioned “radio sweats” to me like a hot flush whilst the radio carries on working after you finish treatment?
Thank you lovely ladies (and gents!) grateful as always for any input. Hope all good with you. Have a lovely weekend!!!
M x
xxx
