3 weeks done

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Hey everyone. Hope your doing well.
well 3 weeks is and the treatment was going well and manageable. Now I have a chest infection so on antibiotics so have to stop chemo meds for 7 days. Platelets have dropped from 300 to 81 this week so I assume this is because of the chest infection and also anemic.
I have been creaming loads and I do think it has helped as my skin is tender but manageable without painkillers. I use the Andrew wipes which are great so don’t use toilet roll at all as even the soft toll felt hard at one point.
I have a tired day once a week so just rest on the bed then and although rt is quick the in and out every day is tiring. Diet wise I just eat my normal food most days so nausea not to bad now. B/m still soft as I take a docusate every night. For some reason my hemerroids have flared up and are painful so the nurse said to use the hemerroids cream sparingly but it doesn’t do much.
so fingers crossed all will remain manageable to the end of treatment without any strong pain meds x

Vicwil 3 hours ago

Hello Michelle,

Firstly well done on getting to the half way point! Won’t be long and it’ll soon be behind you.

I’m just over 2 weeks post treatment. I also had to stop the chemo tablets but in week 4 as they were sending my liver function haywire and I think that it isn’t uncommon for the tablets to be stopped for one reason or another from what I can tell. The nurse said to me the main treatment is the radiotherapy and the chemo is just a bonus which helped put my mind at ease a bit when this happened. You do right to keep going with the creams and I feel my skin faired well as a result of this. By the end I was red and tender externally and had some peeling and blistering around my knicker line in the days following the end of treatment but fortunately up to now don’t have any open sores. You have done well to not need the pain relief. I started with radiation cystitis really early on (end of week 1) and so needed paracetamol/ibuprofen to cope with the constant stinging. I still manage with this level of pain relief in the day now and just take the strong stuff at night. I too also have discomfort from an old hemerroid. The only thing I’ve found that helped this was mixing optilube activ/ instillagel with emollient cream and applying it as this numbs it. The gel on its own really stings otherwise. All the best for the rest of you treatment and I hope it continues to be ok for you.

Vicky x

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