Six month scan…

Hello Clarhedge 

I am so sorry to hear of this, it must be such a worry for you.  The only good thing to come out of all of this is that they are keeping a very close eye on you and are doing all the follow-up scans very quickly.  I hope that everything comes back unchanged and with nothing to worry about.  Of course this is so easy for me to say, you are the one going through this and it must be on your mind all the time.  Life after a cancer diagnosis is such a roller coaster accompanied by all the stress.

I also hope that you get these results back very quickly, eight weeks is mind-boggling, and I am not surprised that it seemed like a lifetime.

Please let us know how you get on.  I will be thinking of you tomorrow.

Big hug

Irene xx

• Thank you. I’m seeing the oncologist in two weeks so I know it won’t take so long for results this time. Eight weeks was a ridiculous time to wait. In the end I contacted Pals at my local hospital to see if they could chase up the results. 
  This last few weeks has been very up and down. I just want to get on with my life. I have dreadful hip and leg pain as I’ve mentioned before. Hopefully it’s just arthritis but my mind does overtime and thinks allsorts. I will update as soon as I know anything xx

Hi,

I know this is a big worry for you, but as Irene says they are obviously keeping a close eye on you, and someone on the MDT has just felt they are better to double check. It would be much worse if they said Yes, you are ok when they had not checked your scan correctly, and something was missed. It does look like they are being extra extra careful. Also, I don't think the oncologist would have told you not to worry if she thought there was anything there, she would have been more cautious in her choice of words, I'm sure.

I know it all still hangs over you, but it's probably ok, and if it isn't you are better to know early.

I wish you all the very best. Please let us know how it goes. xxxx

Oh Clarhedge I'm sorry to hear this. Drives me mad when I hear that you've been told there was nothing significant to worry about and then get a call after MDT meeting. Why dont they just wait until they have all the facts! And I agree 8 weeks is beyond ridiculous to wait for results. My 6 month scan was 5 weeks wait and I thought I was going to have a breakdown waiting for the results. 

My results were not clear and my oncologist said there was still an area of concern that she wanted to discuss at MDT which was a further 3 week wait! Then I had to go in for an EUA which same back clear but they want to do a further scan at 9 months. 

I would say try not to worry but I know from experience how difficult that is. On the plus side at least they are being thorough. They probably all just want to agree before they say NED. 

Sending lots of hugs and positivity xxxx

Hello Clarhedge

I get my results tomorrow regarding a lung node, will also keep my fingers and toes crossed for you.

Stay strong.

Ally xx

AllyL thinking of you tomorrow xx

Hi Clarhedge 

I had a lot of messing around , was told at 3 months i was clear then they changed their minds after i had told everyone i was clear and said I possibly had a new tumour, had to have PET scan and another scan think it was mri can't remember now and eventually got the all clear. Sometimes they seem to find it difficult to tell between scar tissue and tumour and in my case healthy tissue that was damaged in treatment repairing itself. Its better that they are cautious though. Good luck for tomorrow. Sending hugs.  Xx

I’ll be thinking about you. Hope you get good news. This is such a rollercoaster of emotions. Xx

I don’t know why they didn’t wait until the scan had been through both MDT meetings before they called me. Though it’s better I’m getting thoroughly checked out. 
It’s like being on a hamster wheel, for most of us I expect, and not easy getting off

xx

One of my first thoughts was ‘I’ve told everyone it’s good news!’ I felt silly having to tell people ….we’ll actually I need another Pet scan now. 
I already think I’m losing my marbles as it is. Xx