Platelets dropped!

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Hi all

I have question for you hoping that someone has had this experience during treatment.

Basically my platelets have clumped on two occasions and tve reading they for showed that thry have dropped to under a 100 showing that i have thrombocytopenia. Now in the past my platelets have been 13 and I had to be referred to haematology who viewed it as my immune response which came out with a false reading. I wasn't symptomatic, I had to see them a few times, but it all corrected itself and no further issues

All my other bloods are good, white cells are ok. I have neutrophils and my hb hasn't dropped and my suspicion is tgat this is similar to what happened last time and that the reading is false

I had a call last night from the ANP who said to stop taking the chemo tablets until she sees me today but im now worried that if its stopped all together will my outcome be different.

Does anyone have any experience of this? Xxxx

Bungle1 1 day ago

Hi Ian L c2e27

I have no experience of this, but just wanted to say that the radiotherapy is the main part of the treatment so if your chemo has to be stopped im sure you will be ok. I only had a reduced dose of chemo as I had low DPD and im fine. Sending hugs. Xx

PEB24 1 day ago

Hi Ian, I have no experience of this either but sorry to hear this has happened and really hope that you got a plan in place today.

As Bungle1 said, the radiotherapy is the main part of the treatment so everything crossed that it doesn’t impact too much.
xx

AllyL 11 hours ago

Hi Ian

Again no experience of this, but chemo stopped for a few people I was receiving treatment with.

Just to repeat what has been said, sqamous responds very well to radiotherapy. The chemo drugs have been tweaked over the last 50 years, but the radiotherapy is so effective for many, so no change.

Wishing you the very best for the rest of your treatment.

Ally xx

Coco70 5 hours ago

Hello there,

Just to let you know that this happened to me and I had to stop my chemo tablets until my following blood test and then I was fine to resume them. My end result was an all-clear so please don’t worry about this.

All the very best. Xxx

Nikki65 2 hours ago

Again no personal experience of this Ian L c2e27 but quite a few people that have come through the group in my time here have had to stop the chemo side of treatment for various reasons & have still had a complete response. From what I understand if it’s capecitabine that you’re taking daily this is a cell division inhibitor designed to hold things stable whilst the radiotherapy does its thing. Hopefully it’s as you suspect & is a false reading.

Nicola

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