Hi all
I have question for you hoping that someone has had this experience during treatment.
Basically my platelets have clumped on two occasions and tve reading they for showed that thry have dropped to under a 100 showing that i have thrombocytopenia. Now in the past my platelets have been 13 and I had to be referred to haematology who viewed it as my immune response which came out with a false reading. I wasn't symptomatic, I had to see them a few times, but it all corrected itself and no further issues
All my other bloods are good, white cells are ok. I have neutrophils and my hb hasn't dropped and my suspicion is tgat this is similar to what happened last time and that the reading is false
I had a call last night from the ANP who said to stop taking the chemo tablets until she sees me today but im now worried that if its stopped all together will my outcome be different.
Does anyone have any experience of this? Xxxx
Hi Ian L c2e27
I have no experience of this, but just wanted to say that the radiotherapy is the main part of the treatment so if your chemo has to be stopped im sure you will be ok. I only had a reduced dose of chemo as I had low DPD and im fine. Sending hugs. Xx
Hi Ian
Again no experience of this, but chemo stopped for a few people I was receiving treatment with.
Just to repeat what has been said, sqamous responds very well to radiotherapy. The chemo drugs have been tweaked over the last 50 years, but the radiotherapy is so effective for many, so no change.
Wishing you the very best for the rest of your treatment.
Ally xx
Again no personal experience of this Ian L c2e27 but quite a few people that have come through the group in my time here have had to stop the chemo side of treatment for various reasons & have still had a complete response. From what I understand if it’s capecitabine that you’re taking daily this is a cell division inhibitor designed to hold things stable whilst the radiotherapy does its thing. Hopefully it’s as you suspect & is a false reading.
Nicola
Hello Ian L c2e27
I am sorry that this has happened. I was alright taking capecitabine, however, when I had systemic chemo prior to the chemo/radiotherapy my liver levels were high and I had to miss a week. However the next week I was fine and chemo could continue. It isn't the same thing as what you have but I am telling you to illustrate that things do change from week to week.
But if not please be reassured by the others who who had the same thing happen and stopped chemo completely for the remainder of the treatment and had good results.
Hoping the rest of your treatment goes without a hitch.
Irene xx
Hi thanks for advice everyone.
The platelets are still clumped and showing a low reading but I pished them to speak to haematology and as I suspected and as i had told the DRthe DR they think its a false reading and a immune response so I've restarted the tablets x
Hi Ian,
Thats good and hopefully as you say, a false reading.
Good luck with the rest of your treatment and other than the bloods hope all going as well as possible. Xx
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