Anxiety and Waiting

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Hello. Me again. 

I posted a few weeks ago with my worries about my upcoming scan. Im around 18 months post treatment and have just had my follow up mri scan inline with normal practice. My other scans have shown full response to treatment and no evidence of concern. 

My scan was last wednesday and was late because I couldn't make the date on the first one that was planned. Ive got my follow up appointment on Thursday and have not yet received any news from the scan. I have always had this letter before the appointment. Im not really coping very well with it. 

I wondered if anyone had any advice or words of wisdom. 

Thanks so much. Carly xx

  • Hi   Carly

    Im sorry you are struggling, the waiting is the worst. Did you have a specialist nurse during treatment if so give her a call im sure she will be able to put your mind at rest. Sending hugs. Xx

  • Hello Carly,

    The fact that your treatment has been successful so far is a really positive thing, and it sounds like there has simply been an admin hiccup with your letter. Everything seems to be going to plan, so please try to take some comfort from the great progress you have made. 

    Waiting for results and appointments is always pretty stressful, but the more time passes the more settled you will feel, I'm sure. I am four years on and although I still get a bit twitchy when I have checks, it is nowhere near as bad as it used to be. 

    Look after yourself as best you can, and let us know how it goes. 

    xxxx

  • Hi Carly,

    The anxiety waiting for scan results is very real and can absolutely understand your worry. It’s good that everything so far has been positive.

    It could be that the scan hasn’t been reported in time to send out to you prior to your follow up appointment. Where I am it seems to take 2 weeks for the report to come through and outcomes are never given before the appointment which is usually 4 weeks after the scan. 
    I realise that it’s much quicker usually for you but as you only had the scan last Wednesday and your appointment is on Thursday it’s possible that there hasn’t been time to send it out. Just my thoughts.

    Everything crossed for you on Thursday xx

  • Hello Carly

    I never get a letter with results of a scan, it is always only the follow-on appointment.  But if that is your hospital procedure I can understand why you are so worried, but if your scan was late to start with I should think the letter is somewhere in the system and hasn't reached you yet.  I know how worrying this must be for you, scan time is always fraught for all of us, and I will be thinking of you on Thursday.  But all the signs look excellent - a full response to treatment and no worries at all to date.  I think you would be incredibly unlucky if they find something now.

    Please let us know how you get on.

    Irene xx