Anxiety and Waiting

Hi Feather 653  Carly

Im sorry you are struggling, the waiting is the worst. Did you have a specialist nurse during treatment if so give her a call im sure she will be able to put your mind at rest. Sending hugs. Xx

Hello Carly,

The fact that your treatment has been successful so far is a really positive thing, and it sounds like there has simply been an admin hiccup with your letter. Everything seems to be going to plan, so please try to take some comfort from the great progress you have made. 

Waiting for results and appointments is always pretty stressful, but the more time passes the more settled you will feel, I'm sure. I am four years on and although I still get a bit twitchy when I have checks, it is nowhere near as bad as it used to be. 

Look after yourself as best you can, and let us know how it goes. 

xxxx

Hi Carly,

The anxiety waiting for scan results is very real and can absolutely understand your worry. It’s good that everything so far has been positive.

It could be that the scan hasn’t been reported in time to send out to you prior to your follow up appointment. Where I am it seems to take 2 weeks for the report to come through and outcomes are never given before the appointment which is usually 4 weeks after the scan. 
I realise that it’s much quicker usually for you but as you only had the scan last Wednesday and your appointment is on Thursday it’s possible that there hasn’t been time to send it out. Just my thoughts.

Everything crossed for you on Thursday xx

Hello Carly

I never get a letter with results of a scan, it is always only the follow-on appointment.  But if that is your hospital procedure I can understand why you are so worried, but if your scan was late to start with I should think the letter is somewhere in the system and hasn't reached you yet.  I know how worrying this must be for you, scan time is always fraught for all of us, and I will be thinking of you on Thursday.  But all the signs look excellent - a full response to treatment and no worries at all to date.  I think you would be incredibly unlucky if they find something now.

Please let us know how you get on.

Irene xx

Hi Carly (Feather 653 ),

I’m sorry you’re struggling & feeling so anxious. The wait for results really is the worst. I never had letters prior to follow-up appointments with scan results etc., but I know it only takes something like this to make you start spiralling. You’ve had great advice already about calling your specialist nurse prior to your appointment. 

Sending calming thoughts your way & hoping your appointment goes well tomorrow. 

Nicola

Thanks all for your support. I did ring in the end. The consultant was on holiday and so had not yet reviewed the scan. I really had got myself into a tizz. All was fine. So much so that they didnt even do the DRE which was a pleasant change. I also asked for a referral to psychology for my health anxiety which has really ramped up a notch. Im so grateful to be monitored and well looked after but it is so nerve wracking. Love to all. Xx

Hi Feather 635,

So very glad to hear that all is fine. What a relief for you and so sorry that you had to endure so much anxiety. Hopefully you can breathe again. 

Good idea to ask for some additional input to help support you with the anxiety. It’s very easy to underestimate the impact of everything you’ve been through and the ongoing psychological after effects. 

Big hug to you xx

I’m pleased to hear that all is good Feather 653  & also that you’ve asked for some support with your anxiety, unless you’ve either suffered from or watched someone close suffer with health anxiety I don’t think some realise just how disabling it can be! I hope a referral comes through quickly for you.

Nicola

I agree. I had health anxiety before but I could always rationalise it. Now that I know that it might not all be in my head I struggle to keep a lid on it. The therapy was life changing for me when I had it after treatment ended to get me back on my feet so fingers crossed.