Incomplete bowel evacuation

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Hello. Six days post treatment today and things are very up and down healing wise. 

My vulval area is definitely improving but the anus, perineum and knicker line are getting worse - hopefully towards the peak. 

Im suffering with a feeling of incomplete large bowel emptying which is contributing to pain that lasts hours after a bowel movement. The pain is unbearable - I’m led here moaning in pain and my ten year old daughter shouldn’t have to deal with this. I really don’t know what to do. 

Is this common? Does it resolve as healing continues?

I’m taking lactulose twice a day to improve constipation and the oramorph is probably not helping - I also think I am resistant to its pain relieving properties! 

  • I had exactly the same I was given pregabalin which did help. I'm 13 days post treatment and my skin healed quite quickly using flaminal forte.

  • Hello Aurora Hunter

    Sometimes a post brings certain memories back and yes, I had pain after a bowel movement too, I had completely forgotten.  So not only was the actual bowel movement painful, but I had intense throbbing which went on for about two hours afterwards.  I couldn't do anything, I just had to lie down and wait for it to pass.  It didn't exactly feel like an incomplete bowel movement, but someone twisting a knife up my back passage (not that I have any experience).  My oncologist advised taking Oramorph but I had stopped completely earlier as I couldn't balance the Laxido and Oramorph. I ended up getting constipation which was so awful I completely cut all opioids out.  So I told the oncologist that and soldiered on with non-opioid painkillers.  It gradually lessened in severity and then went altogether.

    I remember how awful it was (I had probably blocked it out) but please take heart, it does pass.

    Gentle healing hug

    Irene xx

  • Thanks for the reply. Are you on the UK? I’ll ask about an alternative pain killer. I tried the forte and I was in really bad pain with it - like it was too strong. 

  • Thanks Irene. It’s awful isn’t it. I’ve been up in the night at 3am and 4am and had two small BMs. Thank fully not as bad as the previous evening. Maybe the lactulose is finally working as it should. Have a call with radiology today so will Talk yo them. X

  • Hello Aurorahunter,

    Well done on completing treatment, but I’m sorry you are having such awful pain. This really is the hardest bit and as Irene said your description really does bring back the memories and reality of that time. 

    Everything is so inflamed both inside and out and it can feel unbearable. I wonder if you are on enough oromorph if it isn’t touching the pain. I know it’s really hard to balance it with the constipating effects. I had to use laxido and ducosate but there were certainly long periods of lying down with gritted teeth. 

     I know it’s hard to believe, but it really does get better in time, but in the meantime I hope that your team can give you more support and advice on pain management. It must be really hard trying to manage this and caring for your daughter. 

    Big hug to you x

  • I am in the uk. That's a shame about the forte  

  • Hi AuroraHunter, 

    Only just catching up here... I hope things are starting to ease for you. If not, it may be you need better pain relief, the oramorph alone was not enough for me either, but I was given slow release alongside it, plus lidocaine gel, which went some way to helping. At this stage, you should be hopefully be very close to coming out the other side of the worst of it. Fingers crossed for you! 

    Jenna xx

  • Thanks Jenna. I was in awful pain again last night. The skin issue I can manage but the post poo pain is totally debilitating and lasts for hours. 

    I was supposed to have a review call on Weds but they didn’t ring. I’m going to give them a call today x

  • Did you manage to speak to someone? Honestly, the pain going to the loo was beyond what I could cope with... I wondered how on earth I'd get through, but I did and so will you, as so many others here have... I wish I could say something more than it will get easier, but that's the truth of it. It will. 

    Jenna xx