Post treatment

Hi AGP it's brilliant you have a local support group. Have everything crossed for you. Xx

Hi AGP,

It’s great that there is a support group and well done for managing to get there while you’re still in pain. 

 I hope that you continue to heal and improve day by day. Hoping for good outcome for you and everything crossed. Xx

Hi AGP

Sounds like you’re on a similar timeline to mine, I also have the 6 week follow up on the 31^st July.

Hope the side effects ease for you soon and that you have a positive outcome.

I went to Maggies in Manchester at the start of treatment in May and they didn’t have anything specific for AC so looks like that’s a new thing, have looked on their website and no info, did you have to go into the centre to find out about it?

Monty x

Hi Monty.

 The June meeting was the 1st one. I think it's the 22nd July on a Tuesday . 1. Till 2.30. If you phone, they will let you know. There were 4 of us who attended I found it really helpful. 

Warm wishes Anne

Well done on finishing treatment. Not sure if this is useful at this stage or not, but for my after-treatment period,I wound up buying disposable chux pads from Amazon to put on my bed every day. It saved me from having to change my bedsheets daily. 

I'm wishing you all the best in your recovery and for a good outcome from treatment! Xx

Yes I've been using pads, but this horrible leakage goes everywhere . They took a swab at the Christie on Sunday, no infection in my blood or urine , they are trying antibiotics for Thrush . Their nearly finished, but there has been no change sadly .I guess I was hoping to feel a bit better 8 days on.Just got to be patient I suppose.

I cant wait to wear clothes again. I'm living in 3 long dresses .

Onwards and upwards ,it's got to be worth it in the long run. 

Warm wishes Anne

I'm so sorry you're having leakage and hope it goes away soon. A lot of people on this forum seem to make a turn for the better around the two week mark (I was a bit slower), so you're getting close. As for the clothing, I can totally relate! I basically wore a sarong around my lower half and was so sick of it after a few weeks that I practically wept with joy when I could wear underwear and pants again. 

Wishing you good healing and some regular clothes soon! Xx

AGP

It is still very very early days and you are doing so well; I am sorry to hear about your leaking problem, changing sheets daily is such a task and I am sorry that the disposables aren't enough (I had them for quite some time) as they certainly make life a bit easier.  Hopefully if you get this infection sorted out things will calm down.

Just be very kind to yourself, lots of rest and do the barest minimum, you need to recover!

Great to hear that there is a Maggie's group dedicated to those with anal cancer, that is such a positive step!

You stay safe too

Irene xx

Hi AGP ,

So good to hear you’re done with your treatment although the stage you’re at right now can be difficult. Hopefully just a few more days & you’ll find yourself turning a corner in your recovery & will begin to see improvements. I also hope your team can get to the root cause of this leakage as that must be driving you mad & dragging you down.

I think you’re doing the right thing staying on a low fibre diet for now & it’s good to hear that you’ve regained some weight, it’s important that our bodies have the energy to put into recovery as it’s been through a lot these last few weeks!

It’s fantastic that your local Maggies has an anal cancer support group & that despite everything you’ve got going on that you managed to get there! 

Sending lots of healing thoughts your way & wishing you a speedy recovery. 

Nicola

Hi AGP,

I empathise with you completely as I'm now 3 days post treatment and 'down there' is quite frankly, a war zone! But I have morphine gel, lidocaine, cooling gel, steroid gel and oral pain relief if and when I need it. Have also been provided with dressings which I tried yesterday and they did seem to make things a bit more comfortable. Can't fault the radiotherapy team at all! They've gone above and beyond to do all they can to help. 

I hope your healing (and mine!) gets underway quickly. Will be nice to just use the loo without cursing! Lol 

Take good care of yourself, 

Jenna xx