Cancer and caring

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Hi everyone,

I got my diagnosis of anal cancer on Tuesday and like everyone else head is spinning. Having a PET scan in the next week so sizing and treatment plan will go from there I guess. They have said treatable and MRI and CT OK apart from cyst on ovary and thickened lining of womb so tests for that as well which of course is making my head spin even faster.

My partner of 25 years is terminally ill and is starting to go down hill more now and I am sure some of it has been caused through worry about me. It's really hard not being able to open up and talk to him about it all and putting a brave face on is equally hard. 

My biggest concern is attending the chemo/radio appointments and who will look after him if I am too poorly to do it. I guess as well his treatment was brutal so of course thinking mine will be the same which I keep being told it won't.

Sorry for the ramblings x 

  • Oh you poor thing having to worry like that and in addition trying to protect your partner. Its admirable. 

    I'm sure other people will comment here too but if it helps I worked full time all the way through my treatment up until the last week due to the pain associated with the radiotherapy so it was difficult sitting at my desk. I think it will be after treatment when you will need time to heal and recover. 

    Maybe mcmillan may have some help and advice with regard to getting help to care for your partner should you need it. 

    Wishing you all the luck in the world for starting your treatment. You're in the worse phase at the moment just waiting but once you start and get into a routine, it absolutely goes in a flash. 

    Take care of yourself and please don't be afraid to ask any questions on here no matter how big or small it's a wonderful community. 

    Kindest regards

    Jo xxx

  • My goodness... that really is another level of going through it, with both of you being so unwell Disappointed There must be support available for you, as Edjo said, perhaps call the Macmillan helpline? They should be able to signpost where to go for extra help at this time. 

    So sorry you and your partner are going through this. Wishing you all the best and hoping treatment isn't too harsh on you.

    Jenna xx

  • This is a very difficult journey you are on and you haven't rambled in the least.   I am so sorry to hear about your partner and of course you, you are really going through the mill and my heart goes out to you.  Normally I would say don't hide what you are feeling but your circumstances are way outside the norm and that brave face must take some doing.

    It would be disingenuous to say that this treatment is easy - it can be tough, particularly towards to end and for a couple of weeks afterwards but mercifully the duration is short and the side effects don't all come at once.  Whether or not you would be fit to look after your partner as well as yourself, I would be guessing.  You have had some good suggestions about contacting MacMillan to see what help if available.

    In the meantime, you could start to prepare by having a supply of very easy microwave meals for you both so that any demands on you are absolutely minimal.  Your taste buds may change during chemo and my partner bought me a supply of EnsurePlus, a small drink that provides all the RDA of vitamins and minerals.  These would be suitable for you both if your partner is finding food difficult.

    And we will help support you as best we can as you go through this.  I am keeping everything crossed that further tests show nothing wrong.

    Sending a big hug

    Irene xx

  • Thank you and I absolutely will be back looking for support you are all so lovely xx

  • Hi On a journey

    Welcome to the forum although I'm sorry you have to be here. Firstly ramble away and never apologise for it, use this forum for what ever you need rambling, unloading ( doesn't have to be cancer related), ask any questions you want nothing is off limits and you don't have to put a brave face on here. I'm so sorry about your partner as Edjo said reach out to macmillan they may be able to help you with care. Try to remember we all react and cope differently with treatment, I got off quite lightly as far as side affects go and could have worked for the first 2/3 weeks but it just wasn't practical with my hospital being a 2 hour round trip plus appointment time in the opposite direction to work. If your concern about attending appointments is getting there you can get hospital transport. Sending hugs. Xx