Rectum tumor

So sorry that you have joined our club but we are here to share our stories, give advice on coping with the treatment and most importantly - here for you. The first thing to say is that having a sense of humour definitely helps! The treatment I had was chemoradiotherapy for 5 and a half weeks. It was tough at times but I’m 4 months post treatment and feeling so much better. I had an MRI scan a month ago and I’ve had the good news that there is no evidence of cancer. We all get checked every 3 months post treatment. I don’t know what your treatment plan will be but this cancer is highly curable.

Keep in touch and let us know how things are going.

Hugs

Happyflower

Thanks so much for your reply, great news on your treatment.   You must be so relieved.

Fortunately we both have a very warped sense of humour! Once we know the plan i shall be putting my practical head on and squirreling things in my hypothetical boxes. It just a bit frustrating when they keep using the word 'urgent' which clearly has a different meaning in the NHS! Although they have said that a couple of weeks won't make any difference. Not to them! Does to me! I have a knackered for overthinking the worst case scenarios, but am also of the mindset that what will be, will be. Bit I will fight 'Tina' with everything I've got. 

Have a lovely day x

Hello Nora0778

A big welcome to the forum although I am really sorry to hear about your diagnosis.  These early days are so stressful, there is so much waiting around whilst all the investigations are done and then waiting for the outcome from the MDT meeting.  And whilst waiting there all the feelings of fear, apprehension and disbelief.   Here on the forum we have all experienced that time so you have definitely come to the right place for solidarity.

In the early days I didn't want anyone to know but we told our daughters (I even thought at one point I could hide it from them).  Even now four years later, I am not sure why!  But do what you feel comfortable with.  

When you have your treatment plan, please let us know.  We have lots of tips and coping strategies we can share, and are always here for support should you want it.

I am also sorry you are having to wait until 2nd May, I do hope the time passes quickly for you. 

Big hug

Irene xx

Thank you for your reply, much appreciated.  It's just frustrating that I have to wait 3 weeks for any plan because MDTs won't be moved to a Thursday because of Easter. My colerectal nurse info me that a couple of extra weeks won't make any difference. Not to her maybe, but it does to me. ‍ Never-ending, I'll just deal with it. We've told my brother and my husbands sister and a couple of very close friends. I cant tell my parents yet, untill I know what's going to happen, they are 91 and 85, it won't be an easy conversation. 

I will definitely share my plan once I have it. I hope your journey is going well x x

Hi Nora0778

Welcome to the club no one wants to join. Everyone is either going through it or out the otherside. We are here to support you however you need. You will soon be kicking Tina's butt. Sending hugs. Xx

Thank you x x

Hello Nora,

I'm sorry to hear you are having such a long wait to hear what your treatment plan is going to be, but at least they have all the information now so they'll be able to get on with that at their next MDT meeting.

I also wondered if you had checked out the other forums on this site, as the bowel cancer forum covers rectal and colon cancer; they are different types of tumours from anal and so the treatment plan might be different so it might be worth a look.

It is difficult trying to decide who to tell, and when. I found the toughest when I told my 20 year old son; I did this sort of 'tra la la, well it turns out I have a tumour in my bottom and I'll be having some treatment for it quite soon' kind of thing, because I didn't want to panic him. Some people I didn't - and still haven't - told at all, so there are now people n my life who still don't know and it seems kind of odd to raise it now.

Let us know how you get on, and I hope it comes around quickly for you.

Thank you so much for your reply, yes I will look at the other forums, I think oceans i have a plan i will be able to tell family a bit easier, thank you again x x

Yes, you're right. It's much easier to tell the awful news and then be able to add '..but this is what they're going to do about it'. It sort of allows you to look at the solution, rather than the problem.

Thank you x ️