Still trying to be positive but its bloody hard

Hello Happyflower

The emojis show exactly how you are feeling so don't worry!  If your urine sample showed infection and it hasn't cleared then I would give your GP a call tomorrow.  It may well be that you need different antibiotics.

15 minutes for a pee - sounds excruciating.  Please call him tomorrow.

Irene xx

Thanks Irene-I will do that  xx

My GP called to say there is no sign of infection from the sample taken on Friday( she had sent it to the lab) Still no improvement so she did another ‘ dip stick one this morning and it showed no infection but a strong sense of blood. She’s sent this off to the lab. 
Sounds as if it’s to do with the radiation. I’m still within the 2/3 week post treatment when it seems things can get worse before they get better. I’m just hoping there isn’t long term damage to my bladder. Has anyone else suffered this post treatment? 

Happyflower xx

Hi Happyflower , 

I’m sorry I can’t offer advice but just wanted to say I hope it clears up soon for you ! Must be horrible

Thinking of you 

Hey

I hear you, I had the exact same thing! No sign of infection and they checked twice, I had really really really bad internal inflammation caused by the radiation and I would be in so much pain when going for a wee! It was like having an infection and cystitis at the same time. 
I also thought I was damaged for life, I had it from 2 weeks into treatment and lasted the whole time until about 2/3 weeks post treatment. It does get better I promise and it won’t be like that forever. Eventually every day will get better and the next day better and so on… you got this! If I can do it, you can!!! x

Thank you so much!! You’ve given me hope. 
can’t thank you enough .

Happyflower xxxx

Hi Everyone!

just want to share that I’m 2 and a half weeks post treatment and I’m feeling great! The awful radiation cystitis has cleared up and I feel like a different person. It really got me down. I got in touch with my MacMillan nurse on Monday who assured me that I would be feeling better by the end of this week- and I am. The sore skin has healed and I’m just feeling so grateful. I even sat in a theatre today watching a panto with no discomfort! Oh yes I did!

so everyone out there starting out or almost finishing the treatment remember things really do get better.

Love from Happyflower xx

Brilliant. Have a fab Christmas. Xx

Happyflower

Your name says it all today!  I am so pleased that you are feeling so much better, and wow, going to a panto just over two weeks after end of treatment - you really have recovered quickly.  Your post will be so much comfort to those really struggling through treatment, so thank you for letting us know that.

Now enjoy Christmas!

Irene xxx

Hi everyone!

Im 3 weeks post treatment now and should start the journey with dilators this week. Must say I’m more than a tad apprehensive. I’m feeling comfortable bat last and worried that ‘ jigging around in that area may disturb things. Any insight from people who are going through or have gone through this stage would be much appreciated.

Happy flower xx