Hi
I hope everyone is doing ok today .
I finished my treatment in mid April and recovered well and fairly quickly. Had bloods taken in June which were looking good and tumour market had dropped significantly so scans were booked for September.
Had a lovely summer , out and about, back to eating what I want with only occasional bouts of diarrhea and all very manageable.
Had my MRI beginning of September. The results showed everything was clear except a small area of inflammation that they thought was due to the treatment, but wanted to monitor . Already had a PET scan booked for the following week so was hopeful that it would be confirmed as scarring . Feeling cautiously optimistic.
PET results showed original tumour had disappeared along with original lymph nodes .
However , more lymph nodes have shown up in thoracic area and there is now a lesion on my liver . An MRI on liver the next day confirmed it as a small secondary . Now waiting for an echograph and biopsy on the lymph nodes . Dr said I will likely be having chemo again but wants to have all the results in first .
I am devastated . I feel really well generally but can’t believe I’ve got to face more treatment. I’m a roller coaster of emotions and struggling a bit to keep it together .
Anyone starting out , in treatment or recovering, please note that Chemo / radiotherapy is VERY effective . My original 7 cm tumour was targeted and has gone!!
Unfortunately for me, some cells must have gone astray prior to starting maybe. I just need my new treatment plan now and to get going . More waiting and more stressing ( which I know isn’t good either so stressing that I’m stressing !! Aargh )
xx
Hi Elf66 , I’m so sorry to hear this news, when you’ve been doing so well & feeling good it must have come as such a blow! None of us want to face the prospect of more treatment but it sounds as though your treating team are on the ball & hopefully they’ll get a new treatment plan in place for you quickly. Feeling stressed in your situation is to be expected, I think we’d all feel exactly the same. Please know we’re here to support you however we can.
Nicola
