Post treatment arthritis:

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Hi,

 I am sorry it has been a while since I’ve been on this forum.

I completed treatment and had my first post treatment MRI. The result showed no trace of the cancer. I will have a follow up MRI in four months.

It is a strange feeling being told all is ‘well’ after such a long journey through investigations, surgery and finally chemo-radiation, the pain was horrendous, as I am sure you all know.

I haven’t been left with some difficulties and pain when pooping. I occasionally have urine leakage if I try to hold it, not sure why that is, but it is very annoying.

The other issues I have is periods of extreme fatigue and pain. Some days I am perfectly well and then I get days when I have muscle and nerve pain pretty much all over. On these days I also feel exhausted.

I now also have shoulder pain all the time. I think it is arthritis or maybe some kind of inflammation. I mentioned it to my oncologist and she kind of nodded it through, suggesting that it can happen.

I would talk to my GP about it but it is now impossible to get an appointment. I’ve been waiting three weeks to talk to them about my bum pain when I go to the toilet with no indication that I will ever get an appointment.

Has anyone else on here experienced joint pain after treatment?

  • Hi  that's brilliant news that you are all clear so happy for you. My oncologist told me it takes a good year for your body to recover from the treatment and get back to normal or a new normal. Im just over 8 months post and still feel tired sometimes, I also get achey tight hips so I'm doing some mobility work to sort them. Did you have a specialist nurse you could contact when having treatment, if so maybe worth contacting them if you can't get a GP appointment i still ring mine if I have any questions or concerns. Your body has been through a lot and it takes time to recover, also the radiotherapy treatment is apparently still working upto 6 months post treatment.  Be kind to yourself eat well and exercise if you can it will help. Sending hugs. Xx