Hi,
I am sorry it has been a while since I’ve been on this forum.
I completed treatment and had my first post treatment MRI. The result showed no trace of the cancer. I will have a follow up MRI in four months.
It is a strange feeling being told all is ‘well’ after such a long journey through investigations, surgery and finally chemo-radiation, the pain was horrendous, as I am sure you all know.
I haven’t been left with some difficulties and pain when pooping. I occasionally have urine leakage if I try to hold it, not sure why that is, but it is very annoying.
The other issues I have is periods of extreme fatigue and pain. Some days I am perfectly well and then I get days when I have muscle and nerve pain pretty much all over. On these days I also feel exhausted.
I now also have shoulder pain all the time. I think it is arthritis or maybe some kind of inflammation. I mentioned it to my oncologist and she kind of nodded it through, suggesting that it can happen.
I would talk to my GP about it but it is now impossible to get an appointment. I’ve been waiting three weeks to talk to them about my bum pain when I go to the toilet with no indication that I will ever get an appointment.
Has anyone else on here experienced joint pain after treatment?
Hi LCraig that's brilliant news that you are all clear so happy for you. My oncologist told me it takes a good year for your body to recover from the treatment and get back to normal or a new normal. Im just over 8 months post and still feel tired sometimes, I also get achey tight hips so I'm doing some mobility work to sort them. Did you have a specialist nurse you could contact when having treatment, if so maybe worth contacting them if you can't get a GP appointment i still ring mine if I have any questions or concerns. Your body has been through a lot and it takes time to recover, also the radiotherapy treatment is apparently still working upto 6 months post treatment. Be kind to yourself eat well and exercise if you can it will help. Sending hugs. Xx
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