Well first week done & it’s been a bit of a rollercoaster!
I re-looked at Carole’s (Cranford ) first update this morning and it’s very similar to how I felt past two days. So it helped reassure me it’s not just me. Completely drained & emotional. I started off well, 5fu pump didn’t bother me as much as thought to start as it’s silent….but I’m very glad it’s gone now!
First day was a long day as there were delays getting the Mitomycin & 5fu. Unfortunately, I didn’t sleep much that day, as I was back & forth from toilet, presumably with all the saline pumped & continual chemo fluids.
Apart from lack of sleep, I felt ok second day. Third day started to feel little off, just felt bit drained in evening & brain fog, not being able to find the right words to reply to friends. By Thurs I wasn’t good, shaky, dizzy, dazed…by time I got back home I felt nauseous & was little bit sick – I didn’t feel like it but I sucked on some fresh ginger & had ginger tea with fresh slices which instantly helped. I then managed to eat which also helped rid the sicky feeling. Dr has since given me nausea tablets but I haven’t had to use them, ginger worked for me.
Radiation is delayed every day by 40-50 minutes which isn’t helpful when need a full bladder beforehand! Ladies overseeing me are all wonderful & understanding.
Thurs was another bad night, the cancer niggling & hurting more after radiation (although I’ve had pain and niggles since Oct so it’s not new but made me aware of what’s to come), couldn’t get comfy in bed, by time drifting off at 4am my whole body got very itchy & started to get pain in back of throat. No proper sleep again! Dazed & drained most of today, crying…. Spoke with doctor & he said it’s all side effects of chemo, hopefully feel better over weekend & with some sleep. I could see the chemo had stopped early in day and I was surprised how clearer I felt later, especially by time pump was removed at 5pm. Itching more-a-less gone but still have sore throat though. Hopeful I’ll perk up now I feel I can function and control my emotions! Will try to keep up with meds for pain relief. Feel a bit more hopeful next week will be a little less of a challenge. Step at a time hey! xx
Thanks so much ladies, again so helpful 
really appreciate all your advice and support x x Been back in hospital today with the picc line they're not sure if its a blood clot (no body available to perform a scan at the weekend) or if its an infection. They have put me on antibiotics and then will be reassessed tomorrow x x
Aww Janita I feel for you I really do, you’re certainly not having a smooth ride are you? Hopefully the next couple of weeks will pass a little quicker for you, it’s a trial that’s for sure. Just try & keep your eyes on the prize & imagine the end being in sight with this damn disease gone!!
Don't forget we’re here for you.
Nicola
