Hi,
I had my 6 month appointment with my oncologist, I said I had vaginal and anal stenosis. She became angry with me and said "who told you that ! " and in no uncertain terms continued to berate me for a minute or two, not letting me get a word in edgeways until I was cowed like a dog.
I did manage to convince her later I needed to see a phisio about my vagina, urethra, fat pubis, the muscles in my bum and inner thighs which have been badly affected.
This morning I went for an mri scan, to assess. I was on time, I followed the instructions on the letter exactly, when I arrived in mri the nurse said "what happened !" I said what ?? she said why are you so late, we have been waiting for you, you are very late ???? , she invaded my face space and was cross, I said I was on time ! I clocked in on your system, "oh, dont use the system she says, you used the system, never do that !! if you're coming for mri scan, come straight here" ..... I said I dont often come, I shut TFU, she was in a tizz.
I feel pretty shit, I am fiercly independant because people take the piss with me, maybe I am stupid, I deserve it, I can see why Toni opted out of going to the hospital. Maybe it will be better when I move to Devon, maybe at Guys they are so overworked its like a factory, with unhappy overworked people. Maybe I am too sensitive. I should just get on with it, I'm alive aren't I ?
Hi Twigley,
I’m really sorry you’ve had this experience at your appointment’s!! There is no excuse for plain rudeness!! As with Puddy I wouldn’t have been able to hold back I’m afraid, as much as I don’t like being rude & I understand the NHS have been & still are under extreme pressure they would have been met with the same attitude straight back! It’s common knowledge that our treatment causes anal & some vaginal stenosis so why your oncologist acted so shocked that you’ve presented this way I’m really not sure. Both my oncologist & colorectal surgeon have spoken to me at length about stenosis & how best to manage it. I would just chalk this down to experience & as difficult as it is try not to dwell on it too much. Is your move to Devon imminent? I love it down there we’ve had some lovely holidays in Devon & Cornwall.
Nicola
