Feeling alone and scared on eve of first visit with oncologist after scan

FormerMember
FormerMember
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I finally had a PET scan yesterday, two weeks after the cancer diagnosis that was one week after surgery to remove a misdiagnosed hemorrhoid that I’d had for at least a year. 

Finally I am going to find out what’s what tomorrow. I keep telling myself that whatever it is, whatever stage, there is treatment, but my imagination is flying wildly between “the surgeon said she got it all” to “this arm pain means it’s metastasized to my whole body.” Mostly the latter. And of course all the friends and family who have been so supportive lately are nowhere around this evening and it’s just me and the cats! I don’t know how to get through the night. How do you all do it? And then the nights when you have scans after treatment?

  • FormerMember
    FormerMember
    • I hope all goes well for you, you have nothing to fear with treatment, I am more scared of my cancer than I am of any treatment I have, I'm sure you will be fine keep in touch let me know how things go xxx, my name is Elaine xx
  • Hi  this is the absolute worst bit, waiting for results. I know quite a few on here have imagined spread to their parts of the body when initially diagnosed, I convinced myself it had gone to my lungs and lower back. This caused extreme anxiety and I went to my GP for help.  During the day I kept busy, I work full time in a demanding job so that was easy to do but in the evenings I then had time to think and my imagination ran riot. Distraction techniques do help, there’s always meditation and talking to people too. There’s no easy answer to how to get through the wait for results I’m afraid. We can all relate to what you’re going through so do come on here and seek support. I hope all goes well with the results please let us know how you get on. Bev. 

  • Hi ,

    It really is awful to be in the position you are now. I too had convinced myself (before I knew more about AC metastasis etc.,) that the ache in my hip that I already knew was osteoarthritis had worsened considerably & therefore must mean the cancer had gone to my bones! Obviously it hadn’t but an army of people could have told me otherwise but until I’d had those scans & my Dr had reviewed them & said there was no spread I couldn’t think any other way. I’ve been for an MRI this morning as the clinical trial I’m in is coming to an end, I’m 3 years post treatment & although I’m a little apprehensive waiting for results, I don’t think that will ever totally go away, it’s way less than it used to be earlier on. I hope you get your PET scan results very soon & all is well. 

    Elaine () although I was scared of going into treatment like you the cancer frightened me way more! 

    Nicola

  • FormerMember
    FormerMember in reply to Nikki65

    Thank you so much for your support during that nail-biting episode!! Although I won’t know the stage until after an MRI, the doctor said it’s probably between I and II depending on the tumor size and hasn’t spread to the lymph nodes. Hooray!
    Best of luck to you all in your own journeys and thanks again for your messages xxoo Jenny 

  • Hi  that is a good piece of news that there’s no lymph node involvement, although just for anyone else reading this, even if there is lymph node involvement it can still be successfully treated. That wait for results really is the worst! Bev. X

  • That’s great news , I hope you’re feeling a little more settled now. Forgive me if you’ve already said but do you have a date yet for your MRI?

    The external polyp that sat on top of my tumour had been there for over a year & it was so small that I thought it was a skin-tag but then all of a sudden over the Christmas is bled a couple of times when I wiped after using the loo & then suddenly appeared bigger & changed shape so much like yourself with your ‘haemorrhoid’ this had probably been festering with me for a few months beforehand but I was still only stage 1 at diagnosis. It’s great that your possible staging will be early stages & hopefully you’ll get a treatment plan in place really soon. 

    Nicola 

  • FormerMember
    FormerMember

    Jennnnny, 

    Great news! So glad it was caught early. I just found out mine is stage 2 but no lymph node involvement. I received my PICC line today and will start treatment the end of next week. Good luck!

  • Hi   just wanted to say I hope your treatment goes well. You will see that it will fly by and please let us know if you have any questions during treatment. Bev x

  • Hi ,

    Great to hear you have a start date for your treatment, you’ll be through the other side before you know it. Good luck. We’re here whenever you need us. 

    Nicola