ACC bone metastases

  • 2 replies
  • 5 subscribers
  • 116 views

Hi everyone,

I got ACC in 2023 and followed a surgery and 6 weeks of radiotherapy. 

Recently, I have back pain and I got bad news from my oncologist after IRM examination at the spine. The metastases appear at T8-9-10-11 vertebral. The tumor touches the spine cord cause back pain.

My doctor proposes a separation surgery and SBRT radiotherapy. But he insists that the cancer will be there and I should prepare for a long-term chemotherapy course.

I am at 40s with 2 kids, I am so scare for the next to come.

Do you have any experience about spine metastases to share? Any idea about the treatment course?   

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I thought you couldn’t have chemo as a treatment option if you had ACC? 
    sorry to hear of your news but the procedure sounds positive x