My name is Tony, and I was first diagnosed with ACC about 25 years ago. After a couple of run ins which were sorted by operation it has now come back in several places on my lungs and is inoperable. I've had sabre radiotherapy to push it back a little, but apparently that's a one shot deal so now it's a case of time, but hopefully that will be a few years. I guess the one good thing about ACC is it grows slowly, hopefully really, really slowly! It's hard on my wife and daughters, but we're trying to make the most of things and have some fun before I'm done. We went to Monaco last year and had an amazing time and have a few plans for this year assuming my next appointment goes okay. But I do get very down at times which is hard. I must say though I have a brilliant Macmillan nurse who helps a lot!
