I was diagnosed with AML in March 2023. I am having my treatment at home, cytarabine and venetoclax. Just finishing 3 rd cycle. Anyone else on this drug combination? Am feeling a bit isolated.
My 28 year old daughter has been diagnosed today with AML. She wasn’t even ill so this has come as a massive shock. Looking for advice on how to support and what she will need during/after chemo. Thank you
H everyone, I'm new to this forum, wanted to share my mums story in the possibility of some advice. My mum who is 80 years old was diagnosed with terminal AML end of May (complete shock) on the day she was diagnosed she was admitted into hospital and...
Hi all my dad has been in hospital 3 wks severe pneumonia and very anaemia , blood test discovered blasts in his blood/cells , we met onchologist today who discussed diagnosis and said chemo would not be an option as his body wouldn’t manage and said...
Hi, I’m writing for my aunt who has just found out that her AML have recurred after 25 years in remission. She had her own stem cell transplant 25 years ago and successful remission. She’s low energy right now so I’m writing for her. She’s currently...
I've had it since 2016 and 2 years ago I has a massive stroke because of it. I've slowed down so much. My stroke left me with a slur so I stay in my house and only go out for medical appointments. I just can't bear the thought of people thinking I'm half...
Hi, got my official diagnosis on Friday, think my head is going to explode with all that is going on
Hello , I am new here and I just thought I would join the discussion to let newly diagnosed people know that there is a light at the end of the tunnel. I was diagnosed in 2020 ,just at the beginning of lockdown. After intense chemotherapy I chose to...
Hi this is the first time I have logged into this discussion group. I am hoping someone may be able to point me in the right direction for travel insurance. Last year I obtained insurance via the Civil Service Pensioners Alliance. However they changed...
Hi my name is Wil. I had APML and was treated with and autologous stem cell transplant. The leukaemia went away and have been like that for 3 years. The past 12 months my platelet count has been dropping. Saw my doc yesterday who told me that while my...
