My 11 year old daughter has recently been diagnosed with AML with T8,T21 mutation with loss of X chromosome. She has already had first course and second biopsy and been told they could not see any leukaemia cells but we are still awaiting MRD results, she is due back in hospital on Monday for next course and then waiting for blood counts to recover, approx 6 weeks. Has anyone had similar experiences
Hi Suid855d3b7b and welcome to this corner of the Community although I am sorry to hear about your daughter….. this us such a hard time for you all.
I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell was then presenting.
Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘AML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
To widen your search for support do check out Leukaemia Care UK who the main Leukaemia charity who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
Always around to help more or just to chat.
