Hi there. Very suddenly last week my husband was diagnosed with AML. He's been admitted to hospital (no visiting obviously) & we are still waiting for the bone marrow test results before treatment can begin. It's been over a week now and I am freaking out a bit because surely there should be some urgency here? Has anyone else had this experience?
Hi GillyB55 and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our blood cancer groups.
I don’t have AML but was diagnosed way back in 1999 with a rare incurable but treatable type of skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix.
The waiting in blood cancers is unfortunately normal, great care has to be taken especially with Bone Marrow Biopsies (BMB) to ensure everything is clearly investigated. My BMBs were often sent to a few labs so did take a few weeks to get the results. But let’s look for answers to come back soon and the start button pushed. Always around to chat and support ((hugs))
His team may well have a good idea as to how this will progress but an ‘idea’ is not scientifically accurate enough at times. But he is in the best place as they will be keeping an eye on him.
Not getting into hospital is hard at the moment but do try and use technology to its fullest and that can include being one speaker phone when he is taking with his consultants, or he can at least record these discussions and you can have a listen.
The other very important tool is a central note book where you both keep a bit of the questions you want answers for and a place to keep not if the answers plus things that are said in the passing by consultants that can often slip through getting to you.
Hi GillyB55 good to see that Mark has picked up on your post.
I am actually way up in Inverness but did have some of my treatments at The Beatson in Glasgow. Even being in a ward just above the labs made no difference to the speed of getting results - this is a longer game, a marathon even and definitely not a sprint.
As hard as this is, try and chill out the battle that is going on between your ears. It’s hard but stress and anxiety will make no difference as to how this goes but makes a massive difference to how you physically and mentally get though this.
A number of group members will have their stories in their profile so you can hit our Community names and have a look ((hugs))
