AML Remission

Hi   great news about your remission.  Unfortunately what you are feeling is very normal and is the same for propbably most of us if not all of us.  There is a great article on the US government website by an agency called NIH that explains it well you can click HERE to read it.  

For me I've gone from 'it will never happen to me' to 'it might happen to me' so I worry about every ache and pain.  We also go from being seen all the time to being seen much less regularly and then at some point not at all and this can be really hard to cope with.  It leaves us feeling unsupported and vulverable.  We go from having lots of medical attention and care to nothing.  And ofcourse the fear of it coming back is always there on some level.  I try and remind myself that 1 in 2 of us are going to get cancer in our lifetimes so I don't really need to be any more worried than someone who hasn't already had cancer.  I also figure that if I've already had it then I've ticked that box and the chances of it coming back are less than 1 in 2.

Seek help if you continue to struggle psychologically there is no point suffering in silence.

Wishing you all the best.

I’d suggest you’re feelings are completely normal. You’ve been to hell with your diagnosis, treatment and transplant. Give your mind as well as your body time and space to adjust.

Im 5.5 years post successful STC for AML and realise that it took me probably two years not be concerned that any pain or sniffle was leukaemia coming back. 

Best advice, take every day as a step forward towards your better future. Some days you will feel amazing, some days just normal, and some days you are allowed to be a wee bit sad. 

You've done an amazing thing. Welcome to our very special club. Good luck.