Hello,
I was diagnosed with AML in July 2020 at the age of 24. After 4 rounds of intensive chemo as an inpatient I have been in remission since dec 2020.
since then I have been given midostaurin (rydapt) I take 100mg a day. Apart from the obvious awful smell and size I’m finding the nausea very hard to cope with. I take ondanststron which isn’t too useful and metoclopramide which does seem to help a bit more.
has anyone had any experience with this and found anything that helps with the sickness? Thanks Jess
Jess welcome to this corner of the Community.
I am dropping in past from our lymphoma groups just to say Hi.
I am a few years out from my treatment and honestly we had to try lots of different types of anti sickness meds.... as it was like we found one that worked then within a week it was not working so went onto the next plan, then the next..... 
Lets look for some of the AML folks to be looking in and to give you some help based on their experiences.
((hugs))
Hi Jess, do talk with your team as there are lots of meds that can be used. I was on Immunosuppressants for 4 months after each of my SCTs and they were horrible...... but I had no option
