Hi! I'm scared and want to know more

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  • My name is Amelie and I'm not from here (UK), but my cousin is and she just got diagnosed with acute lymphoblastic leukemia. Her parents both  have dual nationalities, but they are both British by naturalization. Is leukemia treatment covered by the NHS? I just want to know if they will need a lot of money in near future because I can't hope to understand the biology side of this. I appreciate all advice I can get.
  • HI  and welcome to this corner of the Community although I am always sorry to hear about cousin  diagnosis. I am Mike and I help out around our various Blood Cancer groups.

    I don’t have Acute Lymphoblastic Leukaemia (ALL) but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I do appreciate the journey rather well.

    If your cousin is being treated in the UK under our NHS her treatment will be free.

    On the whole ALL can be successfully treated.

    Always around to help more or just to chat.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Thanks for the support! I don't know what I'm supposed to do or how not to worry...

    It's very  good to know NHS is covering her. Does it include just the hospital bills? Is there any additional support? Is cancer a disability?

    Sorry to hear about your cancer. I don't know if it's ''good" that it's rare or not so I don't know what to say.

    I've been reading about leukemia a lot in the last two days so I can assume it could be treatable. I really hope so.

  • On the whole blood cancers like ALL, my type and many others are very treatable and people can go onto live long happy lives. Some of the treatments are strong and going through treatment can be hard work but it is all do-able.

    Having cancer is seen as having a disability especially when it comes to work and having time off work for appointments and treatment.

    Depending on how her physical wellbeing is affected there may also be government benefits that she may be able to claim. She should be assigned a Specialist Cancer Nurse - this is the person who can ensure that she is getting all the support she needs.

    There are various support networks and organisations...... Macmillan being just one of many.

    What hospital (City) is she being treated in....... I could look to see what support is available.

    For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme where your cousin can be linked up with someone, they also have a Support Line on 08088 010 444

    She may also want to see if there is a Maggie's Centre in her area as these folks are amazing.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Hi Amelie, i was diagnosed with Acute Lymphoblastic Leukaemia in 2020. I was 50 yrs old.l i’m sorry to hear about your cousin. If your cousin lives in the UK the treatment is on the NHS. I was in complete remission after a bone marrow transplant after a year. I am fit and healthy now, age 53. I stayed positive throughout. 

  • Hi Sam how you doing