My 4 year old has been diagnosed today with ALL. We have lots of offers to help but not sure what would be helpful at this stage. Feeling like I need some info and advice from people who have gone through this journey...
HI Marley86 and welcome to this corner of the Community although I am always sorry to hear about your 4 year olds diagnosis.
I am Mike and I help out around our various Blood Cancer groups.
I don’t have Acute Lymphoblastic Leukaemia (ALL) but I was diagnosed way back in 1999 at 43 with 2 rare types of T-Cell Non Hodgkin’s Lymphomas the first in 1999 and second in late 2013 the second taking me Stage 4a so although my blood cancer ‘type’ is different I do appreciate the challenges of this journey rather well.
Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘ALL Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check our Parents of children with cancer group.
As well as check to see if you have a Maggie's Centre in your area as these folks are amazing.
Always around to help more or just to chat
