So I posted on this forum several months ago. My 17 year old daughter continues to receive treatment for acute lymphoblastic leukemia, as an outpatient, having been diagnosed in August 2023, and having been an inpatient in hospital for almost a year.. She was discharged as an outpatient in summer 2024, faces a long road of rehab and is due to finish treatment on 15.12.24. She is unwell at the moment with a virus (rhinoenterovirus - basically common cold and flu) and out of action, but living at home, and has a stomach peg fitted, so I can give her oral chemo and fungal infection medication down the peg (she is phobic about tablets so all has to be in liquid form through her peg. My question to you all is this: can you please give me some encouraging examples/case studies of young people/teenagers in her age group who have come through treatment for Acute Lymphoblastic Leukemia and gone on to live normal lives with no further complications? I would be eternally grateful
Thanks Ghaz. The general trend is upwards, but she will get knocked for six each time she has a head cold or something. When she was first diagnosed, the 'rogue cells' were only in the bone marrow, not in the blood, which gives me hope that it was caught in the early stages. Also she responded immediately to the chemo and went into a deep remission in 29 days, which again gives me hope that it was blasted and gone very quickly. The health complications she has had since are a result of the chemo treatment, not the rogue cells themselves. 5 weeks into the treatment she had chemo-induced seizures, and went into a 3 day coma. When she awoke, she couldn't feel her legs from the waist down (this was October 2023) and so it has taken a year for her to learn to walk without zimmer frame/crutches etc. Still working on this, but she can walk unaided around the house and short distances. I feel the need to reach out and connect with others going through same, and am really grateful for your reply. Have you had personal experience with ALL?
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