Hi,
My Dad was diagnosed with ALL Philadelphia at the start of September. He was originally only given 24 Hours to a Week to live. He now has completed stage one of his chemo. The Doctors and Nurses have said he's been doing well. This is where the issue arises. For all the fact the Nurses and Doctors have said his progress has been "Good" his prognosis is now 1-2 Years at best. I just can't fathom how this can be deemed as good. My Dad is 74, Is completely my World and like a Best Friend. I just can't get this through my mind. Can a prognosis be wrong in terms of it being wrong to the benefit of the patient? He deserves more time with me and my family xx
HI GB20220ea4eb and welcome to this corner of the Community although I am always sorry to hear about your dad’s diagnosis. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Acute Lymphoblastic Leukaemia (ALL) but I was diagnosed way back in 1999 at 43 with my first type of rare T-Cell Non Hodgkin’s Lymphoma…… back then the median survival was set at 3-5 years.
Then n late 2013 a second very rare, very aggressive type of T-Cell Non Hodgkin’s Lymphoma appeared taking me Stage 4a and I was given 2-3 years if the proposed treatment plan did not work…….. but I am now 10 years out from my last treatment, I turn 70 this month and I am living a great life.
If only we had a crystal ball…..
Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘ALL Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00.
This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing.
Always around to help more or just to chat
