I went through breast cancer treatment 16 years ago. Double mastectomy, chemo, radio, lymph node removal, lymphoedema. Signed off with no ongoing checks, told to keep an eye out for changes. There’s been a few scares over the years, but overall the NHS has dealt with them quickly.
I started having blood in my stools and had a colonoscopy with polyp removal a year ago, This put me into the bowel screening system. This year, blood was found again, and I had another colonoscopy. No polyps, but a mass found low down. It was removed and sent for analysis. Lots of reassurance that it’s highly unlikely to be anything sinister.
4.30 on a Friday I received a call from the Bowel Screening Service saying they had found severely abnormal cells and I should contact my GP. I explained I have a history of cancer and could this be metastasis. I was told they had no further information and I should chat with my GP. They kept stressing I shouldn’t do nothing. When I asked what would happen if I did nothing, they said, ‘You will die of cancer’. Nothing else. As it was so late on a Friday there was no one to contact, so I did the stupidest thing and went on google. (Should have contacted Macmillan, a fantastic support through my breast cancer treatment).
It turns out I have AIN3 and am having a biopsy on Friday.
The only person I have spoken to is the surgeon who was very matter of fact and wouldn’t expand until after the biopsy.
I’m aware that my GP has complained to the Bowel Screening Service that there is no referral process in place, it’s not right that patients have to go back through their GP for referral.
The prospect of painful surgery, ongoing checks, possible cancer with the debilitating treatment that ensues is terrifying me.
This time the NHS has failed me. I’ve complained but explained I only want the system to be changed and training to be given. I can’t be doing with protracted complaints procedures.
Have I overreacted?
Hello Molly (Molly3)
Personal opinion - no you are quite right - it's not the way to go telling you at 4.30 on a Friday to contact your GP. In my opinion they should notify the GP and he should set the ball rolling for you.
The NHS has changed so much in the last few years - I look after the Prostate Community here (although you can find me on other groups as I do help out where there is no Community champion). I was given my diagnosis in a face to face conversation - now I find the NHS telephoning people with a cancer diagnosis - I feel that is wrong - some people may need support as soon as they are told!!
So no I am in full agreement with you - it's not an overreaction and you are quite right to feel as you do.
I wish you well with your ongoing personal journey - stick with us here for your support and best wishes for the future.
Kind regards - Brian.
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