How do you cope with this?

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My partner has terminal cancer and doesnt have more than a few months to live.  We’ve known for 3 months and the deterioration in him has been quick.  He’s declined palliative chemo and immunotherapy as he couldnt tolerate the side effects.  He’s sleeping more and doesnt want to do anything.  How do others cope with this? My whole world is falling apart and we have almost no family / friends to support or talk to, we are on our own.  We do have the hospice team, who come every so often and he goes to a day centre once a week, but i’m not mentally coping and I dont want to get out of bed in the morning anymore, i’m crying a lot of the time.  The hospice provides counselling after death only, there is very little for me.  I’ve rang the main charities support lines and in our area there is nothing for carers of people who are dying and the hospice dont provide it (i dont know if this is resource or commissioning issues). How are we supposed to manage day to day? I’d really like to speak and connect with others in similar circumsrances but there are no carers groups for this in my area either.

  • Hi mspixie

    Im sorry to hear you are going through this. It is both devastating and exhausting watching the one yo love deteriorate and knowing there is little yoi can do.

    My husband died in october, I was his sole carer until the end when the hospice stepped in. His last months were lived in our living room

    Im sorry your hospice doesnt provide support for carers, i dont know why that would be. Also your local authority. You could request a carer assessment which may throw up something you arent aware of. Also register with your GP as  a carer, they should have a mental health team you can see.

    How you cope. I asked this question many times and somehow you just do. Draw on anyone, friends, neighbours even if its just to get shopping in. Come here to chat, we all get it here even if we dont have answrrs. Call macmillan if you havent already, they can support or signpust and help with things like benefits.

    Just enjoy whatever time you can, we tried to get out when he was well enough but he took to his bed 2 months before he died and never left the house again . We just spent time together, watching rubbish telly and remembering the past. We also got accounts, passwords etc all in irder which nade it so much easier once he had gone.

    Huge hugs to you, its an awful path to be on x