Does anyone have experience of their loved one being "moved on" from hospice care?
My husband was admitted as an inpatient at the hospice five days ago after two traumatic weeks in hospital, during which his condition seemed to getting visibly worse every day. The doctor at the hospital told us that in her opinion he probably only had 2-3 weeks left, which did not surprise either me or him to be honest. Before the hospital I'd been caring for him at home, and struggling pretty badly to cope, it must be said.
I was so relieved to see him being cared for so well in the calm setting of the hospice at last. It wasn't easy for either of us to face up to the idea that he was nearing the end finally, 3 years on from his diagnosis. Nonetheless there was a sense of closure I guess. And I have been gradually getting used to being at home without him.
But now I'm getting worried as a couple of the doctors at the hospice have been talking about him not being allowed to stay there more than two weeks, and saying that, while he is obviously a very sick man who is near the end of life, he might be required either to return home or go to a nursing home. I know he doesn't want to do either of those things and both of them fill me with dread for different reasons. I am also worried that he would be very traumatised at being moved again when he is so weak.
It was my understanding that hospice = dying, is this not so? Does anyone else have experience of this and if so, what happened? I would really appreciate hearing about anyone else's experience. I'm not sure why we have had so many conversations with various health professionals about my husband's preferred place to die (which has always been the hospice) if at the very end he may be shunted off somewhere else for not dying fast enough
I should add that there is no criticism of the hospice or its staff, they are incredible. I'm just really worried right now
