Who stole my strong

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Not really sure where to start.

Hubby given 6mnths, that was 2 mnths ago. I look at him and think "no that cant be right surely?' He knows he has been given limited time but does not want to know how long the Oncologist has said.

He was diagnosed with kidney cancer 13 years ago and had one removed, then 3 lung ops due to spread. 8 years ago diagnosed incurable and given 1-6 years. Immunotherapy was stopped just before last christmas as he was hosptalised with heart issues, caused by the treatment.

At last appointment in July this year advised no further treatment to be offered as not beneficial, the week before was again hospitalised due to legs collapsing 3 times in 2 days. Luckily got quick appt with GP and was referred straight to A&E.

I think its starting to hit me that this is getting very real, then i read stories of ppl living well past the time they have been given, and try to convince myself he will be one those ppl, but in reality no one can say.

My heart and brain hurt.

  • I’m exactly the same. Husband diagnosed pancreatic cancer. Such a shock when we thought it was an ulcer he was suffering from. Waiting to see if it’s operable. Scan on Sunday to see if it has spread to Liver. If it has will be just chemo. Head is banging all the time, can’t sleep . Just keep thinking I’m dreaming it all. And I can’t stop holding on to him for dear life. Im so scared to lose him. He’s only 59. My mum had the same diagnosis 30 years ago and left us within 9 months. 

  • My partner had several problems before he was finally diagnosed with pancreatic cancer. He was very tired then he had jaundice, he lost his appetite and had severe diarrhoea.  He had the Whipple procedure last year and was in hospital for 4 weeks. They only removed part of his pancreas so he is not diabetic.  He had to wait until October before he could start chemo.  He was given Folfirinox at 85% but it was too much for him and made him really ill so they reduced the dosage to 60% and he was fine and had very few side effects except he lost his beautiful hair.  This has now grown back and is even more beautiful as he has curls, which he is not keen on, but I think he looks really handsome.  A recent scan has shown that the cancer has returned although localised so he will start palliative chemo in a couple of weeks. I am praying for a miracle and, like you, I am holding on to him too.

    Hopefully your husband can have the same operation so don't give up hope.

    x

  • We can all never give up hope. Thank you for sharing your journey. Sending big hugs to you both xx

  • Thankyou Mrs VT for sharing things you did in your final weeks with your husband.

    We've done some of those thngs already, we did then when he was first diagnosed and surgery was very risky.

    I hope that you have mangaedto get those photos.

    I hate the waiting for this or that appointment. Hubby is anaemic now so we wonder if this will aeffect the chemo.

    I want hike to do things he wants to do, we have a short uk holiday booked and hope to get some weekends away. I wake a lot at night thinking really daft things like Where is the water meter? Or who services the boiler?

    I still cry a lot!