Hi! New to here and struggling to write this as I can't believe this is happening to us . My son has been diagnosed with incurable melanoma and has started amiotherapy. He soon will have his first lot of scans to see if its working. He seems well and not to many side affects yet. He is just getting on with life , going to work ,going out with friend ect. Which is all great. It's me struggling with it not sure what to do or how to feel other then scared and sad and shocked and alone. I don't cry if front if him but all the time while I'm alone . Just wonder if there was any other Mums going through this or anyone had any advice ? As I've said we are just starting this journey and I want to be as supportive as I can but find it so hard when I'm on my own.
Hi Lake So sorry you have found yourself here. Being incurable is living with a condition which I am. Your son sounds like he is doing excellent to not let it change his life. Good man I say he is being positive and the best thing you can do is support him and be positive also imho , All the Best Minmax
Hi Lake
So sorry you are going through this. It is really tough as a parent worrying about your child. With me it is my daughter, she has synovial sarcoma which has spread to her lungs & tumours have now also been found in her back and brain. She is very much like your son in that she is getting on with her life. I get very sad and angry that this is happening to her, it is just so unfair that these young people are not able to have the life they deserve. I seem to cry at some point most days & have to try & find things to occupy my mind so I don't have to think about it. I also try to be around others rather than alone. Do you have a Maggie's centre near you. I have found them to be very helpful and I did a living with less stress course with them which helped. I can usually calm myself down when I am feeling overwhelmed using some of the things we covered.
All the best.
Affie
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007