My grandad has terminal neck cancer and is in the last stages of his life. He got a tracheostomy and a feeding tube for palliative radiotherapy but is unable to care for the tracheostomy by himself, so hes living with my parents. In the past few weeks he has really declined and caring for him has become quite hard. He is very stubborn and independent. He has been very reluctant to get any help, but has accepted small things such as things to help him in the shower and stop pressure sores, but he wont accept a hospital bed or carers and it is really beginning to be a big issue. His neck and face are becoming very swollen which could be helped by a hospital bed and his mobility has severely reduced and getting him out of bed is very hard. He's very reluctant
Has anyone got any advice to get him to accept? Or how we can phrase it so that he knows he has to accept? He doesn't want to go into care and my mum (his main carer) doesn't want that either, but I'm concerned the longer we leave it he will have to go to some kind of care home. He hasn't been referred to palliative care or macmillan nurses because he says no and my mum wants to respect his wishes. My mum wouldn't admit but she is struggling and I want to talk to her soon about getting stuff in place. Any advice very welcome!!!
Hi
I'm so sorry to hear this......I'm not qualified to know who to contact for professional help, but you can contact Healthcare professionals on Macmillan website and they can offer advice/direct you to who can assist.
Your Grandad, love him, sounds like a proper old school gent. Very stubborn and independent 'I can manage thank you' (They don't make them like that these days!)
Is it worth trying a bit of reverse psychology on him? Having a chat and asking him if he can help you look after your Mum. You know 'Mum is looking tired, I'm a bit worried about her Grandad.......what can we do to help her do you think Grandad?' The other alternative is having his GP come for a home visit, he may accept he needs more aids/help from 'a professional'?
As for your Mum, she is doing an absolute sterling job, but in order for her to continue to honour your Grandad's wishes she needs to be well enough to look after him at home and a few small aids & a hospital bed will help her do that. (you can tell her my poor Dad struggled at home right up till 4 days before he passed away with my Mum caring for him......the relief when he was put into a proper hospital bed was instant. He visibly relaxed and looked comfortable for the first time in a very long time).
I wish you lots of strength....and good luck!
Take care of your Mum too. xx
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